Wolf S.M.,University of Minnesota |
Branum R.,University of Minnesota |
Koenig B.A.,University of California at San Francisco |
Petersen G.M.,Rochester College |
And 19 more authors.
Journal of Law, Medicine and Ethics | Year: 2015
Genomic research results and incidental findings with health implications for a research participant are of potential interest not only to the participant, but also to the participant's family. Yet investigators lack guidance on return of results to relatives, including after the participant's death. In this paper, a national working group offers consensus analysis and recommendations, including an ethical framework to guide investigators in managing this challenging issue, before and after the participant's death. © 2015 American Society of Law, Medicine & Ethics, Inc.