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Orsini M.,Pesquisador Do Hospital Geral Of Nova Iguacu | Mello M.,Iniciacao Cientifica Servico de Neurologia | Lisieux D.,Grande Rio University | Passaro C.P.,Grande Rio University | And 9 more authors.
Revista Neurociencias | Year: 2012

Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative illness characterized by the progressive loss of the upper and lower motor neurons, whose mortality fundamentally occurs due to the respiratory repercussions. The caregivers of ALS patients experience extreme psychic pressures, developing significant levels of overburden, which affect them in many aspects of their lives. Objective. To measure the quality of life (QOL) of caregivers of patients with ALS. Method. The study was conducted in the Neurology Service of the Antonio Pedro University Hospital and in the Deolindo Couto Institute of Neurology, both in Rio de Janeiro. The study was restricted to nine selected caregivers. An interview was carried out, using a questionnaire for the identification of the caregiver and implementation of the SF- 36. Results. The best scores were obtained in the "functional capacity" and "limitation by physical aspects" domains. The lowest scores corresponded to the "emotional aspects", "social aspects", "mental health" and "vitality" domains. Discussion. The need for attention to caregivers of ALS patients is increasingly demanding, since they constitute a "unit of care". Their psychic health or psychological stress show good agreement. Conclusion. According to this study, the quality of life of ALS patients' caregivers seems to be influenced over the years of follow-up.

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