Prevalence of Disturbed Eating Behavior in Children and Adolescents with Type 1 Diabetes: Assessment and Comparison to Healthy Peers - Results of a Multicenter Questionnaire-based Study [Prävalenz gestörten Essverhaltens bei Typ 1 Diabetes im Kindes- und Jugendalter: Erfassungsmöglichkeiten und Vergleich mit gesunden Gleichaltrigen - Ergebnisse einer multizentrischen Fragebogenstudie]
Hevelke L.K.,Medizinische Psychologie |
Albrecht C.,Klinik fur Kinder und Jugendliche |
Busse-Widmann P.,Klinik fur Kinder und Jugendmedizin |
Kranz J.,University of Tübingen |
And 6 more authors.
PPmP Psychotherapie Psychosomatik Medizinische Psychologie | Year: 2016
Introduction: Published data on prevalence of disturbed eating behavior in youth with type 1 diabetes are heterogeneous. This study assesses the prevalence rate of disturbed eating behavior in a representative German sample of children and adolescents with type 1 diabetes. The prevalence rate is compared to the one published for a national sample of healthy peers. Furthermore prospects as well as limits of a generic screening tool used to identify disturbed eating behavior are compared to those of a diabetes specific screening tool. Material and Methods: A total of 246 children and adolescents (age: 11-19 years) with type 1 diabetes, from 6 pediatric diabetes centers in Germany, completed the generic SCOFF questionnaire and the diabetes specific Diabetes Eating Problem Survey-Revised (DEPS-R) to assess their eating behavior. Prevalence data were compared to representative data from a nationwide survey in Germany (KiGGS-study). Results: A total of 16.3% of the children and adolescents with type 1 diabetes scored above the SCOFF cut-off (≥ 2) (24.2% of the girls and 8.9% of the boys). The percentages in the healthy controls were 28.9% for girls and 15.2% for boys. Compared to this the prevalence of disturbed eating behavior was lower in the diabetes group (p=0.017 and p<0.001). According to the diabetes specific DEPS-R 11.2% of the boys and 13.2% of the girls with type 1 diabetes practiced insulin-purging. The association between SCOFF-scores and the items referring to insulin-purging in DEPS-R, was stronger for girls than for boys (r=0.437 vs. r=0.144). Among the young people with type 1 diabetes DEPS-R-scores showed stronger associations to the quality of metabolic control (HbA1c) than the SCOFF (boys: r=0.357 vs. r=0.217 and girls: r=0.368 vs. r=0.131). Discussion: Children and adolescents with type 1 diabetes are not more frequently affected by disturbed eating behavior than their healthy peers. Particularly boys with type 1 diabetes practicing insulin-purging, are not reliably detected by a generic screening tool. Conclusion: As part of long-term care a diabetes specific screening tool should be used to identify adolescents with type 1 diabetes and disturbed eating behavior more reliably. © Georg Thieme Verlag KG Stuttgart · New York.
SPECTRUM: education and treatment program for continuous glucose measurement in pediatric diabetology [SPECTRUM – Schulungs- und Behandlungsprogramm zur kontinuierlichen Glukosemessung (CGM) in der pädiatrischen Diabetologie]
Holder M.,Olgahospital |
Gehr B.,Diabetes und Stoffwechselzentrum |
von Sengbusch S.,Universitatsklinikum Schleswig Holstein |
Ziegler R.,Diabetologische Schwerpunktpraxis Munster |
And 6 more authors.
Monatsschrift fur Kinderheilkunde | Year: 2016
Continuous glucose monitoring (CGM) is used in an increasing number of children and adolescents with type 1 diabetes in Germany. The recent decision of the Federal Joint Committee will provide further access to this technology as a reimbursable benefit. Requirements for successful long-term CGM use are the realistic expectations of children and adolescents with type 1 diabetes, and their parents, education oriented toward activities of daily life, and structured reflections about their experiences with the CGM system. SPECTRUM is the first manufacturer-independent, product-neutral CGM education and treatment program for parents with young children, for young people, and for adults with type 1 diabetes. Implementation of so-called “Train the Trainer” sessions for interested diabetes team members is supported by the Working Group for Pediatric Diabetology (AGPD e. V.) across Germany. Evaluation and certification of the program are in the planning stages. © 2016 Springer-Verlag Berlin Heidelberg
Zillmer S.,Helmholtz Center Munich |
Warncke K.,Helmholtz Center Munich |
Raab J.,Helmholtz Center Munich |
Winkler C.,Helmholtz Center Munich |
And 8 more authors.
Diabetes, Stoffwechsel und Herz | Year: 2016
Type 1 diabetes incidence has been increasing every year, especially in infants; the disease is often diagnosed at an advanced stage with diabetic ketoacidosis already present. Diagnosis at an early stage can prevent complications, and is one of the objectives in the Fr1da study, the first project of its kind worldwide that has screened more than 33000 infants - Aged two to five years for islet antibodies since January 2015. The first three cases that were diagnosed with an early stage of type 1 diabetes (positive for two or more islet autoantibodies) have already been included in a structured follow-up programme. The present contribution will cover these cases as examples for the process from positive screening result to individual prediabetes training.
Gaul C.,University of Duisburg - Essen |
Gaul C.,Martin Luther University of Halle Wittenberg |
Malcherczyk A.,Martin Luther University of Halle Wittenberg |
Schmidt T.,Medizinische Psychologie |
And 2 more authors.
Medizinische Klinik | Year: 2010
Background: Difficulties in recruiting patients for clinical trials lead to increasing costs, and prolonged implementation of evidences into medical practice. Knowledge about motivation and barriers in potential participants would be helpful to develop successful recruitment strategies. Currently, no systematic research of determining factors affecting the decision to participate in clinical studies is available from German samples. Methods: After been given details about a potential participation in a clinical or diagnostic study in nine study centers, patients were recruited for an additional structured questionnaire survey concerning motivation and barriers to participation. Results: 62 patients were included into the survey. 95.1% did not have any experience with clinical studies before. 66.1% met the physician explaining the study and asking for informed consent for the first time. Despite this, 96.6% judged the physician to be competent. Family and friends were important for decision-making about the participation in a study. Gender was only of marginal influence. The majority of patients (91.4%) expected advantages of the study for their own. 88% of the patients denominated potential advantages for other patients as an additional motivator. The possibility of adverse events was inferior for patients in decision-making about participation in a clinical trial. Conclusion: Physicians recruiting patients for clinical studies should be well prepared about details of the study and should have adequate time for an introductory conversation in a quiet environment. Including relatives into the introductory conversation may enhance the motivation and therefore the success of recruitment. Potential advantages of a participation for the own treatment and additionally for other patients should be highlighted. Possible side effects should be explained in a realistic manner. © 2010 Urban & Vogel, Muenchen.
Hussein R.J.,Institute For Epidemiologie |
Schneller T.,Medizinische Psychologie |
Dierks M.-L.,Institute For Epidemiologie |
Walter U.,Institute For Epidemiologie
Gesundheitswesen | Year: 2013
Objective: Dentists' suggestions for the establishment of preventive care were investigated on 3 levels; dentist, dental associations and unions (DAU), and health care system (HCS). Associations between categories of suggestions and dentists' characteristics were explored. Methods: A postal survey was sent to 2 075 dentists practicing in Bremen and Lower Saxony. The answers on 3 open-ended questions were analysed in a qualitative manner based on the quality control protocol (QCP) of the Federal Joint Committee. Quantitative methods were used for exploring associations between categories of suggestions and gender as well as age. Results: Response rate was 33% (n=685). Dentists made 2 120 suggestions (dentist=752, DAU= 574, HCS= 794). The majority of dentists (90%) suggested educating and motivating patients. Dentists stated that support from DAU is needed in educating the public (50%), offering preventive-oriented training (35%), and in advertising for prophylaxis (18%). On the HCS level, about 60% of the suggestions concerned remunerating prophylaxis and expanding the existing bonus system. Significantly more female (p=0.010) and younger dentists (p=0.031) contributed to educating patients than male and older dentists. Conclusion: Education is the key message of this work. Essential topics such as prevention for elderly and risk groups were not a focal point. Education on the DAU and HCS levels can be realised through organising nation-wide health campaigns. Funding options for prevention and regulating multidisciplinary work between dentists and other health-care providers should be examined. These changes can contribute enormously to further establish prevention. © Georg Thieme Verlag KG Stuttgart. New York.
Patient education programs for children, adolescents and parents - Survey on the current status of concepts and education requirements in Germany [Patientenschulung in der kinderund jugendmedizin - Bestandsaufnahme deutschsprachiger konzepte und bedarfsanalyse]
Ernst G.,Medizinische Psychologie |
Szczepanski R.,Kinderhospital Osnabruck |
Lange K.,Medizinische Psychologie
Pravention und Rehabilitation | Year: 2013
Background: In some chronic diseases structured education programs are integral part of pediatric long term care. Systematic reviews conclude that they have beneficial effects on somatic, psychosocial and healtheconomic outcomes. The current status of pediatric education programs in Germany is investigated and reviewed in this study according to two questions: 1) For which of the chronic somatic diseases do structured programs exist? 2) What are the barriers against providing education courses? Methods: Three sources of information were used: 1) expert workshops; 2) a structured survey among 178 experts nationwide; 3) webbased resources including guidelines as well as published education materials. Results: For 18 of 37 somatic chronic diseases structured education programs were identified. Seven of them were scientifically evaluated and published. For the remaining 19 diseases no structured programs could be identified. Main barriers against providing education courses mentioned by the experts were heterogeneity and low prevalence of the diseases, families' little interest to participate, and lack of funding. Conclusion: For many of the diseases there is a need to educate young patients and their parents. In contrast for the majority of diseases no adequate evaluated concepts are available or reimbursed. To fill this gap structured programs have to be developed and evaluated. Furthermore creative concepts should be considered to establish education programs for young people with rare diseases nationwide. © 2013.
Lange K.,Medizinische Psychologie
Diabetologe | Year: 2012
People with diabetes are at increased risk of cognitive dysfunction and dementia. As potential risk factors chronic exposure to hyperglycemia, vascular complications, hypertension, depression and genetic factors are discussed. In addition for older patients with cognitive dysfunction there seems to be an association between the frequency of severe hypoglycemia and cognitive decline. Dementia as a severely limiting factor of diabetes self-management requires glycemic goals and therapeutic strategies which are individually customized to patient-specific risks and impairments. In patients with limited cognitive functioning, glycemic goals may be less intensive but hyperglycemia leading to symptoms or risk of acute hyperglycemic complications should be avoided. Patients with severe cognitive deficits require a wellcoordinated multidisciplinary geriatric and diabetic care. © Springer-Verlag 2012.
Sassmann H.,Medizinische Psychologie |
Lange K.,Medizinische Psychologie
Tagliche Praxis | Year: 2016
With the onset of type 1 diabetes, families with an affected child or adolescent face an additional challenging lifelong task. The missing endogenous insulin has to be adapted to the food, physical exercise, and other circumstances of the child's life on a daily basis with an intensified insulin regimen with either multiple daily injections or an insulin pump therapy (CSII). For parents of children with diabetes, the diagnosis of diabetes implies the need to reconcile their role as guardians with the one of a diabetes treatment team in everyday life. Over the past two decades several studies, meta-analyses and guidelines provide evidence for the significant role of psychosocial factors in the successful management of type 1 diabetes in young people. This review gives an overview on the main findings from the studies of psychological adjustment, family dynamics and parents' needs. In addition psychological disturbances and psychiatric disorders, psychosocial support and behavioural interventions in children and adolescents with type 1 diabetes are summarized. According to current recommendations for psychosocial care of young people with diabetes, social workers and psychologists with expertise in diabetes should be part of the interdisciplinary diabetes team. All family members should receive support from the diabetes care team from diabetes onset on and regularly on the long run. Furthermore all diabetes care team members should receive training in the recognition, identification, and provision of information and counselling on psychosocial problems related to diabetes.
PubMed | Medizinische Psychologie
Type: Journal Article | Journal: Die Rehabilitation | Year: 2012
Treating diabetes mellitus type 2 (DMT2) essentially involves long-term changes of health behaviour, especially diet and physical activity habits. Medical rehabilitation tries to support these changes by patient education and practical instructions. While short-term successes are frequently obtained, the main challenge lies in maintaining these results in the longer run. This study examines whether a fractionated inpatient rehabilitation programme of 3 weeks duration in combination with an additional week of inpatient rehabilitation after 6 months and a subsequent aftercare telephone service facilitates positive long-term effects for patients with DMT2.A prospective randomized controlled trial was conducted with 411 patients with DMT2 in order to compare the fractionated inpatient rehabilitation programme with aftercare to a 3-weeks standard rehabilitation programme without aftercare. The analysis included physiological (cardiovascular risk, HbA1c, BMI) and psychosocial (diabetes-specific coping, quality of life) parameters at baseline (beginning of the programme) and 1 year later.After 12 months, no significant differences between the groups were found in the physiological parameters. At the same time, however, the aftercare group showed larger benefits in almost every psychosocial dimension (coping, quality of life, subjective health). Coping and quality of life had even improved when compared to baseline. In contrast, these parameters had decreased further in the standard-care control group when compared to baseline.The intensive aftercare was successful in the long-term improvement of the patients psychological well-being. Also, the high rate of participation in fractionated inpatient rehabilitation suggests both the acceptance of and the need for aftercare. However, positive long-term changes of physiological parameters probably will require more specific interventions or individual case management. The effectiveness of fractionated inpatient rehabilitation may be limited by the adverse social, psychological and financial situation of the patients.