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Wanden-Berghe C.,Hospital General Universitario | Wanden-Berghe C.,University Miguel Hernandez | Hernandez J.A.,Hospital Principe de Asturias | Pelaez R.B.,Hospital Vall DHebron | And 30 more authors.
Nutricion Hospitalaria | Year: 2015

Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2013. Material and methods: from January 1st to December 31st 2013 data was recorded for the HEN registry and further descriptive and analytical analysis was done. Results: in this period 3 223 patients (50.6% men) and a total of 3 272 episodes of HEN were registered in33. Spanish hospitals. The rate of prevalence was of 67,11 patients/million habitants/ year 2013. A high percentage of patients (98,24%) were older than 14 years. Adult’s mean age was 69,14 years (sd 17,64) and men were younger than women p-value <0,001. Children mean age was 2,38 years (sd 4,35). The most frequent indication for HEN was neurological disease for children (49,1%). and for adults (60,6%). Gastrostomy was the most used administration route for children (51%) while younger ones were fed with NGT (p-value 0,003) also older adults (48%) were fed with this type of tube (p-value <0,001). The most frequent reasons for cessation of treatment was death, 44,4% were children and 54,7% were adults. Conclusions: The number of patients and hospitals registered increased in the last years while the other variables maintain steady. The registry developed allowing contrasted analysis of data in order to get more information. © 2015, Nutr Hosp. All Rights Reserved.

Wanden-Berghe C.,Fisabio Hospital General Universitario Of Alicante | Wanden-Berghe C.,University Miguel Hernandez | Cristina Cuerda Compes J.,Hospital Gregorio Maranon | Pelaez R.B.,Hospital Vall DHebron | And 31 more authors.
Nutricion Hospitalaria | Year: 2015

Aim: to communicate the results of the Spanish Home Parenteral Nutrition (HPN) registry of the NADYA-SENPE group for the year 2013. Material and methods: data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2013. Results: a total of 197 patients and 202 episodes of HPN were registered from 35 hospitals that represents a rate of 4,22 patients/million habitants/year 2013. The median age was 53 years (IQR 40 – 64) for 189 adult patients and 7 months (IQR 6 – 35,5) for children. The most frequent disease in adults was neoplasm (30,7%) followed by other diseases (20,1%) and mesenteric ischemia (12,7%). Short bowel syndrome and intestinal obstruction (25,9%) were in 35.7% cases the indications for HPN. The most frequent diagnosis for children were the congenital intestinal disorders and other diagnosis, both with a (37,5%) and short bowel syndrome and intestinal obstruction were the indication for treatment, each was present in 50% of the sample. Tunneled catheters (50%) and subcutaneous reservoirs (27,7%) were frequently used. The septic complications related with catheter were commonly frequent with a rate of 0.74 infections/1000 HPN days. HPN duration presented a median of 1,69 days. A total of 86 episodes finalized during the year, death was the principal reason (45%), followed by “resumed oral via” (43,75%) while it happened inversely for children, 66,7% of them resumed oral via and 16,7% deceased. Fifteen per cent were considered for intestinal transplant, children were proportionally candidates, p-value 0.002. Conclusions: the number of participating centers and registered patients increased progressively respect to preceding years. Since 2003 Neoplasm is still being the principal pathological group. Death is adult’s principal reason for finalizing HPN and “resuming oral via” for children. Despite that NADYA registry is consolidate as a essential source of relevant information about the advances in Home Artificial Nutrition in our country, currently is in an improvement process of the available information about patients characteristics with a special emphasis on children even though they still being a minority group. © 2015, Nutr Hosp. All Rights Reserved.

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