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ORLANDO, Fla.--(BUSINESS WIRE)--University of Rochester Medical Center’s UR Voice Team and Holland Bloorview Kids Rehabilitation Hospital’s Client and Family Centred Care Simulation Development Team were named the winners of the fourth annual Sherman Award for Excellence in Patient Engagement at the National Patient Safety Foundation’s (NPSF) 19th Annual Patient Safety Congress today. The honor was conferred by Taylor Healthcare and the Lucian Leape Institute on behalf of EngagingPatients.org, the online community that sponsors the award. The Sherman Award recognizes innovative programs that are improving care and outcomes through patient and family engagement. Additionally, three programs were named 2017 finalists: Brigham Health-Brigham and Woman’s Hospital Patient Safety Team; Dayton Children’s Hospital Family Resource Connection; Northeast Ohio Medical University Health Professionals Affinity Community (HPAC). University of Rochester Medical Center: UR Voice is a patient-reported outcomes survey tool that uses an NIH-funded software program called PROMIS (Patient-Reported Outcomes Measurement System). Patients take a 3-5 minute iPad survey at every outpatient visit. The software captures their perspectives on important indicators including physical function, mood and pain level. The data is used for shared decision-making—evaluating whether a treatment or surgery is a good choice based on the patient’s level of impairment or pain. It allows patients to compare their data with US normative data and shows them graphically what the treatment would do for them using predictive analytics. To date, more than 350,000 surveys have been completed by 112,581 patients. Holland Bloorview Kids Rehabilitation Hospital: Holland Bloorview is Canada’s largest children’s rehabilitation hospital focused on improving the lives of kids and youth with disabilities. A multi-disciplinary team including family-centred care leads, hospital leadership, clinicians and families developed simulation scenarios that provide an opportunity for meaningful, hands on learning about how to embed client and family-centred care into daily practice and improve patient and family experience. The training is delivered to all newly-hired clinicians and the hospital is also providing the training to current staff to ensure consistency and quality of care for patients and families. Seven scenarios were created and four (two videotaped and two live) are being used as teaching tools. Families were full partners in simulation development. Their engagement ensured the scenarios are authentic and have lasting impact. After initial development, families continue to support the evolution of the workshops and participate as simulation facilitators. “We continue to be impressed by the programs focused on patient and family engagement happening throughout the world,” said Mark O’Leary, president of Taylor Communications. “The Sherman Award gives us an insider’s look at how providers are connecting and building deeper relationships with patients and families. “We know that improving communication with patients and families continues to be the cornerstone of strong patient engagement and patient satisfaction. The winners and finalists all crafted programs committed to listening to valuable input from patients and families and incorporated that feedback into programs to improve patient care. These concrete changes and dedication to incorporating patient and family voices are truly will impact outcomes and patient satisfaction and ultimately transform healthcare.” Nominations were evaluated on their success in advancing patient engagement and driving results, sustainability, potential for replication, effectiveness in communicating and collaborating with stakeholders and inspirational value. “Greater patient and family engagement—at all levels—really is an essential factor in improving safety and outcomes,” said Tejal K. Gandhi, MD, MPH, CPPS, chief clinical and safety officer, IHI, and president of the Lucian Leape Institute. “As this year’s honorees demonstrate, improving patient and family engagement takes thought, effort, persistence, and innovation. But it can be done successfully with great effect.” During the coming months, EngagingPatients.org will feature the winners and finalists as guest bloggers. Full details of the winner and finalist initiatives are at www.engagingpatients.org. Launched in June 2013, EngagingPatients.org is an online community dedicated to improving the patient and family experience, the quality of care and improving outcomes by enhancing communication between patients, their advocates and their providers. The Sherman Award was created to recognize innovative programs and approaches increasing patient and family engagement and delivering better, safer care and outcomes. The Lucian Leape Institute, established by the National Patient Safety Foundation (NPSF) in 2007, is charged with defining strategic paths and calls to action for the field of patient safety, offering vision and context for the many efforts under way within health care, and providing the leverage necessary for system-level change. Since NPSF merged with the Institute for Healthcare Improvement on May 1 of this year, the Institute continues its work within IHI’s safety program area. To learn more about our trainings, resources, and practical applications, visit ihi.org/PatientSafety. Taylor Healthcare, a part of Taylor Communications, is a marketing and communications company serving the healthcare industry with a broad spectrum of tangible and digital solutions primarily in the acute, long-term care and payer markets. We help our customers standardize and manage communications across the continuum of care, enabling them to engage the right person with the right information at the right time to influence behavior and achieve desired outcomes.

News Article | February 15, 2017
Site: www.eurekalert.org

PITTSBURGH (February 14, 2017) ... Dysphagia, or swallowing disorders, affects nearly one in 25 adults, especially the elderly and those who have suffered a stroke or neurological disease, and results in approximately 150,000 hospitalizations annually. A patient's risk for dysphagia is first diagnosed by screening, and may require an endoscopy or fluoroscopy for further evaluation. However, some patients who aspirate do so silently, causing doctors to misdiagnose. To develop an improved screening method for dysphagia, the National Science Foundation awarded a researcher at the University of Pittsburgh's Swanson School of Engineering a CAREER Award through the NSF's Division of Chemical, Bioengineering, Environmental, and Transport Systems. Ervin Sejdic, assistant professor of electrical and computer engineering, received a five-year, $549,139 award to further research using high-resolution vibration and sound recordings that would help doctors diagnose dysphagia and assist patients in improving how to properly swallow while eating or drinking. The CAREER program is the NSF's most prestigious award for junior faculty who exemplify outstanding research, teaching, and their integration. Dr. Sejdic, who began this research while a postdoctoral associate at the University of Toronto and Holland Bloorview Kids Rehabilitation Hospital, Canada's largest children's rehabilitation hospital, explained that an improved, non-invasive method to detect dysphagia could help to reduce patient risk and hospitalization. "By using modern data analytics we can compare and contrast the sound and vibrations of normal swallowing against patients with dysphagia," Dr. Sejdic explained. "This allows us to understand how the airway normally protects itself during swallowing to avoid aspiration, and how this is affected during dysphagia, without the need for surgery or intubation." According to Dr. Sejdic, patients with silent dysphagia may pass a traditional screening, which increases the potential for choking and suffocation. Analyzing the sounds and vibrations from the neck would not only reduce the incidence of silent aspiration, but also the need for conservative recommendations that limit eating and drinking for individuals with neurological disabilities such as multiple sclerosis or ALS. In addition to developing the technology, the award will allow Dr. Sejdic to collaborate with speech language pathologists to develop an online learning module to further education and outreach throughout the U.S. He would also like to utilize the data analysis to design a mobile device that would help patients while eating, but notes that possibility is several years in the future. "Endoscopy and fluoroscopy are still the gold standard for detecting dysphagia," Dr. Sejdic said. "For now we're not looking at replacing them but rather enhancing and improving the screening process."

Growing demand from clients waiting to access vital services in a healthcare sector under economic constraint, coupled with the pressure for ongoing improvement within a multi-faceted organization, can have a significant impact on the front-line staff, who are essential to the successful implementation of any quality improvement initiative. The Lean methodology is a management system for continuous improvement based on the Toyota Production System; it focuses on two main themes: respect for people and the elimination of waste or non-value-added activities. Within the Lean process, value-added is used to describe any activity that contributes directly to satisfying the needs of the client, and non-value-added refers to any activity that takes time, space or resources but does not contribute directly to satisfying client needs. Through the revision of existing models of service delivery, the authors' organization has made an impact on increasing access to care and has supported successful engagement of staff in the process, while ensuring that the focus remains on the central needs of clients and families accessing services. While the performance metrics continue to exhibit respectable results for this strategic priority, further gains are expected over the next 18-24 months.

Baribeau D.A.,University of Toronto | Anagnostou E.,University of Toronto | Anagnostou E.,Holland Bloorview Kids Rehabilitation Hospital
Current Psychiatry Reports | Year: 2014

Autism spectrum disorder is often comorbid with behavioral disturbances such as irritability, aggression and hyperactivity. Throughout the mid 2000s, several large-scale controlled clinical trials were published leading to the approval of two medications (aripiprazole and risperidone) for treatment of irritability in this condition. This review serves as an update regarding new research findings regarding psychopharmacology for children and adolescents with ASD. In summary, the past five years have yielded no further approved medications with ASD as a primary indication. Important new research results include 1) long-term safety and efficacy data (52 week) regarding treatment with aripiprazole for irritability, 2) consensus regarding potential harm from SSRIs for treatment of repetitive behaviors in children/ adolescents with ASD, 3) a randomized controlled trial showing modest benefits from atomoxetine on hyperactivity, 4) many novel agents currently under investigation. © 2014 Springer Science+Business Media New York.

Holland Bloorview Kids Rehabilitation Hospital | Date: 2013-12-30

The proposed invention is a method and system for the segmentation of dual-axis accelerometry signals for the purpose of identifying problematic swallowing events. The method and system employ a sensor, a data collection means including an algorithm for analysis of the data. The proposed invention considers the stochastic properties of swallowing signals in both directions, AP and S-I to extract events associated with swallowing. A segmentation algorithm may be applied to the signals to establish the time duration of swallows and swallows may be classified with respect to gender, body mass index, age or types of swallow.

Holland Bloorview Kids Rehabilitation Hospital | Date: 2015-06-30

Methods and systems for detection of anxiety using physiological signals. The detection of anxiety may take place in real-time and in a naturalistic setting. A modified Kalman filter may be used.

Help Kids With Disabilities Unwrap Joy, Fun and Laughter TORONTO, ON --(Marketwired - November 30, 2016) - This is one gift you won't have to worry about being returned. This holiday season, why fret about the wrong size or colour? Why not give something more meaningful, like the opportunity for kids with disabilities to play music, sports and take part in other fun-filled activities through Gifts that Grow, Holland Bloorview Kids Rehabilitation Hospital's new symbolic giving catalogue. Regardless of their abilities, all kids want to be kids -- they want to play, have fun, laugh and make friends. Holland Bloorview's Gifts that Grow includes life-changing gift alternatives for your friends and family. Open up a world of possibilities for kids with disabilities by purchasing toys, equipment, supplies and services that are sure to spread joy and put smiles on kids' faces. Here are just a few of the gift options: Larger gifts ($250 - $10,000) can help purchase services that have an even bigger impact on kids. They range from gifts that fund workshops for youth to live independently; to providing financial support for families; to giving kids with disabilities a voice by funding critical research that will lead to innovations that will help them express themselves. Holland Bloorview Kids Rehabilitation Hospital is Canada's largest children's rehabilitation hospital. We focus on improving the lives of kids with disabilities, kids needing rehabilitation after illness or trauma and kids whose medical complexity requires specialized care. We serve nearly 7,500 children and youth annually accounting for over 1,000 unique diagnoses. The hospital is a global leader in childhood disability research, teaching, and client and family centred care. Holland Bloorview Kids Rehabilitation Hospital Foundation raises funds in the community for Holland Bloorview Kids Rehabilitation Hospital. For more information, visit: hollandbloorviewfoundation.ca.

News Article | December 5, 2016
Site: www.marketwired.com

TORONTO, ON--(Marketwired - December 05, 2016) - Dr. Evdokia Anagnostou, MD, has been appointed as the inaugural Dr. Stuart D. Sims Chair in Autism, an honour bestowed to an individual who demonstrates extraordinary academic leadership towards improving the quality of life for kids with autism spectrum disorders (ASD) and their families through research and teaching. Anagnostou is a senior clinician scientist and co-lead of the Autism Research Centre at Holland Bloorview Kids Rehabilitation Hospital. She is also an associate professor in the Department of Pediatrics at the University of Toronto. "I am honoured to receive this recognition and excited that it will support further research to expand our knowledge of ASD to help kids and their families thrive," says Anagnostou. "When researchers, families, and health professionals work together, we can be transformative in our efforts to translate findings from the basic sciences into effective treatments for kids with ASD and their families. This chair will help further that vision." Anagnostou first joined Holland Bloorview in 2008 as a child neurologist and clinician scientist. Her research is centred on how genes affect the brain, body and behaviour with the goal of translating that understanding into new ways and effective treatments to help individuals with autism and associated neurodevelopmental disorders. She is the lead of the Province of Ontario Neurodevelopmental Disorders (POND) network and the Canada Research Chair (Tier II) in Translational Therapeutics in Autism. Anagnostou is also a co-lead of the Autism Treatment Network (Toronto site) focused on providing the best quality care to children with ASD and their families. She received her undergraduate degree from McGill University, completed her neurology training at McGill University in 2003 and postdoctoral fellowship in Autism/Developmental Disabilities at Mount Sinai School of Medicine in 2005. "This chair appointment recognizes Dr. Anagnostou as a trail-blazing scientific leader in the field of autism," says Tom Chau, vice president of research at Holland Bloorview. "She has galvanized an international community around better treatments for young people with autism, uniting basic, clinical and health service scientists in an expansive, transdisciplinary, client and family-centred program of research. As the inaugural incumbent, I have no doubt that she will further illuminate a path to discovery, innovation and eventually enhanced quality of life." "As a family, we are delighted to have been involved with establishing the Autism Chair. Having met Dr. Anagnostou many times, we are impressed with her dedication and commitment to advance her research to benefit children with ASD. We also have been positively impacted by the work done at Holland Bloorview," said Charles Sims. The Chair is named after Dr. Stuart Sims (1929-2001) who graduated from the University of Toronto and practiced in Toronto as an Obstetrician-Gynecologist. He contributed greatly to medicine and the advancement of care for his patients. The Dr. Stuart D. Sims Chair in Autism is supported by Holland Bloorview and the University of Toronto. To donate to the Dr. Stuart D. Sims Chair in Autism and help fund advances in autism research, please click here. Holland Bloorview Kids Rehabilitation Hospital is Canada's largest children's rehabilitation hospital, fully affiliated with the University of Toronto. We pioneer treatments, technologies, therapies and real-world programs that give children with disabilities the tools to participate fully in life. The Autism Research Centre conducts research aimed at improving outcomes and quality of life for children with autism spectrum disorders and their families. Visit www.hollandbloorview.ca to learn more.

Holland Bloorview Kids Rehabilitation Hospital | Date: 2012-01-18

Disclosed herein is a method and apparatus for swallowing impairment detection, whereby a candidate executes one or more swallowing events and dual axis accelerometry data is acquired representative thereof. Upon feature extraction and classification, vibrational data acquired in respect of each swallowing event is classified as indicative of one of normal or possibly impaired swallowing. Computer-readable media comprising statements and instructions for implementation by a processing device are also described in facilitating swallowing impairment detection respective to candidate swallowing events.

News Article | November 17, 2016
Site: www.marketwired.com

TORONTO, ON--(Marketwired - November 17, 2016) - Holland Bloorview Kids Rehabilitation Hospital Foundation has announced a $3 million gift from The Ron Kimel Foundation Trust to support research innovations for kids with disabilities. The Kimel Family Opportunities Fund will enable Holland Bloorview's research institute to act on new opportunities that will make a significant difference in the lives of kids with disabilities. This remarkable gift will be leveraged to match and unlock additional funding for new or expanded research areas and collaborative research projects. "Holland Bloorview is a world-class teaching and research hospital," said Ron Kimel. "We are very happy to help support and propel forward the amazing work coming out of Holland Bloorview's research institute." As Canada's largest children's rehabilitation hospital focused on improving the lives of kids with disabilities, Holland Bloorview's research institute has been focused on advancing research to help improve the quality of life for children and youth with disabilities. Collaboration opportunities with partners across the academic community often require matched funds from Holland Bloorview, and this funding will help support future opportunities that could provide a big impact in the lives of kids with disabilities. "The potential of our research to transform the lives of children and families living with disabilities is in large part realized through the generosity of donors who share our vision of a world of possibility," said Tom Chau, Director of Holland Bloorview's research institute. "This generous gift will help us enhance our innovation mandate and continue our leadership in the field of childhood disability," said Sandra Hawken, President and CEO of Holland Bloorview Foundation. "Ron and his family have been long-time supporters and friends of Holland Bloorview. These funds will ensure that Holland Bloorview is nimble enough to take advantage of time-sensitive research opportunities that can have a local, provincial, national and international impact on kids with disabilities." Holland Bloorview's research institute is recognized in Canada and around the world for its unique client population and leadership in the field of childhood disability. The research institute brings together a multi-disciplinary team of scientists who work collaboratively with clinical staff, clients, and families to generate clinically-linked and applied pediatric rehabilitation research. For more information, please visit hollandbloorview.ca. ABOUT HOLLAND BLOORVIEW KIDS REHABILITATION HOSPITAL FOUNDATION Holland Bloorview Kids Rehabilitation Hospital Foundation raises funds in the community for Holland Bloorview Kids Rehabilitation Hospital. Holland Bloorview is Canada's largest children's rehabilitation teaching hospital. The hospital pioneers treatments, technologies, therapies and real-world programs that give children with disabilities the tools to participate in life to the fullest. For more information, visit: hollandbloorviewfoundation.ca

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