Gillette Childrens Specialty Healthcare

Saint Paul, MN, United States

Gillette Childrens Specialty Healthcare

Saint Paul, MN, United States
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Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 5,000 boys. Gillette Children's Specialty Healthcare Neuromuscular Clinic is led by Dr. Randall Richardson. Children who have disabilities and complex medical needs—and their families—have been at the center of Gillette's mission for more than 120 years. And like PPMD, Gillette believes in the importance of standards of care for a variety of challenging childhood conditions. What makes the Gillette clinic a stand out is their pediatric program, transition program, and an adult program, all led by highly qualified coordinators. Gillette believes that with innovative medical and surgical intervention, proven therapies and assistive technology, and the support of compassionate health care professionals, children who have these conditions can thrive and live happy, healthy, productive lives. "This serves not just as a wonderful recognition of the work that Gillette Children's Specialty Healthcare neuromuscular team has done, but also offers us the opportunity for continuing performance enhancement," Richardson said. "We are great, but this relationship allows us the opportunity to be even better." Kathi Kinnett, MSN, CNP, PPMD's Senior Vice President of Clinical Care and co-director of Transforming Duchenne Care Initiative (TDCI), is pleased that Gillette is receiving certification. Kinnett says, "Gillette has amassed an impressive team capable of providing comprehensive Duchenne care across the lifespan.  We are excited to add this new center, with their expertise, compassion and enthusiasm, to our growing network of Certified Duchenne Care Centers." Kinnett says that PPMD receives numerous requests from centers wanting to be considered for certification. "When PPMD launched our certification program in 2014, we had no idea that the Duchenne community would respond so positively. Families have come to rely on our certification as an indication that these centers are the best of the best. We will continue to certify more centers across the country throughout 2017, recognizing teams of physicians for their leadership in Duchenne care, which in turn will enable families to make the best choice for the care of their child." In 2014, PPMD launched the Certified Duchenne Care Center Program as part of its robust Transforming Duchenne Care Initiative (TDCI). PPMD will continue to award qualified centers the title of Certified Duchenne Care Center in an effort to ensure centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence-based knowledge, minimize heterogeneity in clinical research outcomes, and comply with standards in clinical care that were established by the CDC Care Considerations. As part of its ongoing mission to end Duchenne, PPMD continues to insist that all people with Duchenne receive comprehensive care. To learn more about PPMD's Certified Duchenne Care Center Program, visit PPMD's website. Click here to learn more about the history of PPMD's Certified Duchenne Care Center Program and to access PPMD's first published article on the program. Duchenne is a fatal genetic disorder that slowly robs people of their muscle strength. Parent Project Muscular Dystrophy (PPMD) is the largest most comprehensive nonprofit organization in the United States focused on finding a cure for Duchenne muscular dystrophy—our mission is to end Duchenne. We invest deeply in treatments for this generation of people affected by Duchenne and in research that will benefit future generations. We advocate in Washington, DC, and have secured hundreds of millions of dollars in funding. We demand optimal care, and we strengthen, unite and educate the global Duchenne community. Everything we do—and everything we have done since our founding in 1994—helps people with Duchenne live longer, stronger lives. We will not rest until every person has a treatment to end Duchenne. Go to for more information or to learn how you can support our efforts and help families affected by Duchenne. Follow PPMD on Facebook, Twitter, and YouTube. Founded in 1897, Gillette Children's Specialty Healthcare Neuromuscular Clinic (Gillette) was the first hospital in the nation for kids who have disabilities. Last year, nearly 25,000 families with children facing such complex medical conditions as cerebral palsy, epilepsy and traumatic brain injury, trusted Gillette to help their children thrive. Gillette tailors its care model specifically to the needs of its patient and family community so they can achieve their highest potential.

The new agreement reflects a commitment by both organizations to make health care more affordable while creating new opportunities to collaborate and develop innovative approaches to improving the overall quality of care for patients and their families. The agreement applies to all Blue Cross members with either commercial coverage (through employer health plans and the Allina BluePrint ACO plan available for individual coverage) or enrollment in Minnesota health care program (Medical Assistance and MinnesotaCare). All 20 Gillette locations – including the St. Paul hospital, six Twin Cities clinics and 13 Greater Minnesota clinics – are included in the broader Blue Cross provider network. "We appreciate Gillette's commitment and collaboration to address the cost pressures that the State of Minnesota is experiencing with the Medicaid program," said Garrett Black, senior vice president of health services for Blue Cross. "Both Blue Cross and Gillette were in alignment that long-term stability required flexibility on both sides. In the end, we were aligned on what was best for our members and their patients." "Blue Cross applauds Gillette's willingness to be part of the efforts taking place both locally and nationally to hold the line on health care costs," said Black. "Being able to renew our contract ahead of schedule gives our members and their patients the peace of mind that comes with uninterrupted care and access to world-class surgeons, physicians and other specialists." "We always strive to provide the best possible care for our patients and the community," said James Haddican, Gillette Children's Specialty Healthcare vice president of finance. "We're pleased that we were able to come up with a multiple-year agreement with Blue Cross, so our patients can focus on their care and not have to worry about medical coverage." About Blue Cross and Blue Shield of Minnesota Blue Cross and Blue Shield of Minnesota, with headquarters in the St. Paul suburb of Eagan, was chartered in 1933 as Minnesota's first health plan and continues to carry out its charter mission today: to promote a wider, more economical and timely availability of health services for the people of Minnesota. A nonprofit, taxable organization, Blue Cross is the largest health plan based in Minnesota, covering 2.9 million members in Minnesota and nationally through its health plans or plans administered by its affiliated companies. Blue Cross and Blue Shield of Minnesota is an independent licensee of the Blue Cross and Blue Shield Association, headquartered in Chicago. Go to to learn more. About Gillette Children's Specialty Healthcare Founded in 1897, Gillette Children's Specialty Healthcare was the first hospital in the nation for kids who have disabilities. Last year, nearly 25,000 families with children facing such complex medical conditions as cerebral palsy, epilepsy and traumatic brain injury, trusted Gillette to help their children thrive. Gillette tailors its care model specifically to the needs of its patient and family community so they can achieve their highest potential. Go to to learn more. To view the original version on PR Newswire, visit:

Leiser K.,Gillette Childrens Specialty Healthcare | Heffelfinger A.,Medical College of Wisconsin | Kaugars A.,Marquette University
Clinical Neuropsychologist | Year: 2017

Objective: To examine associations among parent–child relationship characteristics and child cognitive and language outcomes. Methods: Preschool children (n = 72) with early neurological insult completed assessments of cognitive and language functioning and participated in a parent–child semi-structured interaction. Results: Quality of the parent–child relationship accounted for a significant amount of unique variance (12%) in predicting children’s overall cognitive and language functioning. Impact of neurological insult was a significant predictor. Conclusions: Caregiver–child interactions that are harmonious and reciprocal as evidenced by affective and/or verbal exchanges support children’s cognitive and language development. Observations of interactions can guide providers in facilitating child- and family-centered interventions. © 2017 Informa UK Limited, trading as Taylor & Francis Group.

Barney C.C.,Gillette Childrens Specialty Healthcare
Developmental Medicine and Child Neurology | Year: 2015

This commentary is on the original article by Valkenburg et al. on pages 1049-1055 of this issue. Developmental Medicine and Child Neurology. © 2015 Mac Keith Press.

Novotny S.A.,Gillette Childrens Specialty Healthcare | Warren G.L.,Georgia State University | Hamrick M.W.,Georgia Regents University
Physiology | Year: 2015

Aging-induced declines in muscle size and quality are thought to contribute to catabolic alterations in bone, but changes in bone with age also profoundly alter its response to muscle-derived stimuli. This review provides an overview of some of the alterations that occur in muscle and bone with aging, and discusses the cellular and molecular mechanisms that may impact these ageassociated changes. © 2015 Int. Union Physiol. Sci./Am. Physiol. Soc.

van der Krogt M.M.,VU University Amsterdam | van der Krogt M.M.,University of Twente | Delp S.L.,Stanford University | Schwartz M.H.,Gillette Childrens Specialty Healthcare | Schwartz M.H.,University of Minnesota
Gait and Posture | Year: 2012

Humans have a remarkable capacity to perform complex movements requiring agility, timing, and strength. Disuse, aging, and disease can lead to a loss of muscle strength, which frequently limits the performance of motor tasks. It is unknown, however, how much weakness can be tolerated before normal daily activities become impaired. This study examines the extent to which lower limb muscles can be weakened before normal walking is affected. We developed muscle-driven simulations of normal walking and then progressively weakened all major muscle groups, one at the time and simultaneously, to evaluate how much weakness could be tolerated before execution of normal gait became impossible. We further examined the compensations that arose as a result of weakening muscles. Our simulations revealed that normal walking is remarkably robust to weakness of some muscles but sensitive to weakness of others. Gait appears most robust to weakness of hip and knee extensors, which can tolerate weakness well and without a substantial increase in muscle stress. In contrast, gait is most sensitive to weakness of plantarflexors, hip abductors, and hip flexors. Weakness of individual muscles results in increased activation of the weak muscle, and in compensatory activation of other muscles. These compensations are generally inefficient, and generate unbalanced joint moments that require compensatory activation in yet other muscles. As a result, total muscle activation increases with weakness as does the cost of walking. By clarifying which muscles are critical to maintaining normal gait, our results provide important insights for developing therapies to prevent or improve gait pathology. © 2012 Elsevier B.V.

Schwartz M.H.,Gillette Childrens Specialty Healthcare | Schwartz M.H.,University of Minnesota | Rozumalski A.,Gillette Childrens Specialty Healthcare | Novacheck T.F.,Gillette Childrens Specialty Healthcare | Novacheck T.F.,University of Minnesota
Gait and Posture | Year: 2014

Excessive femoral anteversion is common among children with cerebral palsy, and is, frequently treated by a femoral derotational osteotomy (FDO). It is important to understand surgical, indications for FDO, and the impact of these indications on the treatment outcomes. The Random Forest algorithm was used to objectively identify historical surgical indications in a large retrospective, cohort of 1088 limbs that had previously undergone single-event multi-level surgery. Treatment, outcome was based on transverse plane kinematics obtained from three-dimensional gait analysis. The, classifier effectively identified the historic indications (accuracy=.85, sensitivity=.93, specificity=.69, positive predictive value=.86, negative predictive value=.82), and naturally divided limbs into four, clusters: two homogeneous +FDO clusters (with/without significant internal hip rotation during gait), one homogeneous -FDO cluster, and a mixed cluster. Concomitant surgeries were similar among the, clusters. Limbs with excessive anteversion and internal hip rotation during gait had excellent outcomes, in the transverse plane. Limbs with excessive anteversion but only mild internal hip rotation had good, outcomes at the hip level; but a significant number of these limbs ended up with an excessive external, foot progression angle. The Random Forest algorithm was highly effective for identifying and, organizing historic surgical indications. The derived criteria can be used to give surgical decision making, guidance in a majority of limbs. The results suggest that limbs with anteversion and significant, internal hip rotation during gait benefit from an FDO, but limbs with excessive anteversion and only, mild internal hip rotation are at risk of developing an excessive external foot progression angle. © 2013 Elsevier B.V.

Tervo R.C.,University of Minnesota | Tervo R.C.,Gillette Childrens Specialty Healthcare
Journal of Child Neurology | Year: 2012

To identify parent-reported symptoms that predict parenting stress in preschoolers with global developmental delay, 201 parents/guardians of 142 boys and 59 girls with global delay, mean age 39.1 months (range, 18 to 63 months) were studied retrospectively. Parents completed the following: (a) a semistructured interview; (b) the Child Development Inventory, (c) Child Behavior Checklist 11/2-5, and the (d) Parenting Stress Index-Short Form. Forty-two percent of parents described clinically significant parenting stress (≥ 85th percentile). The Parenting Stress Index-Short Form subscales Difficult Child and Parent-Child Dysfunctional Interactions were elevated. Parental stress increased with higher gross motor development and decreased as social and fine-motor ratios increased. Furthermore, stress increased when parents reported higher levels on the Emotionally Reactive and Withdrawn scale scores and when parents reported Pervasive Developmental and Oppositional Defiant Problems. In mobile children with global delay, behavior problems predict parenting stress. © The Author(s) 2012.

Skluzacek J.V.,International Dravet Syndrome Epilepsy Action League | Watts K.P.,IDEA League UK | Parsy O.,IDEA League France | Wical B.,Gillette Childrens Specialty Healthcare | Camfield P.,Dalhousie University
Epilepsia | Year: 2011

The advent of social networking via the Internet and the commercial availability of tests for SCN1A mutations permitted the rapid development and growth of parent-led associations that provide advocacy and support, as well as promote education and research regarding Dravet syndrome (DS) in the last 10 years. The International Dravet syndrome Epilepsy Action League (IDEA League) is a partnership of parents and professionals united in the purpose of creating greater awareness and understanding of DS. In 2004, parents in the IDEA League support network began to collect data from families about their children with DS in order to investigate observations that, in addition to epilepsy, many of the children seemed to share similar problems. The information gained suggests comorbid conditions and raises many hypotheses for further research. The process has led to more rigorous formal studies and an increased understanding of the clinical spectrum of DS. There is an urgent need for collaborative research, comprehensive care, and professional and family education. Mortality appears high, primarily due to sudden unexplained death in epilepsy (SUDEP) and status epilepticus (SE). Most parents wish direct discussions with their child's physician about mortality. The high risk of death and the many other stresses related to DS result in recurrent grief and loss for patients and families and highlights their need for additional advocacy and support. © Wiley Periodicals, Inc. 2011 International League Against Epilepsy.

Gillette Childrens Specialty Healthcare | Date: 2013-03-07

A device and method of tapering medication in a post-operative patient is provided. The system includes a stationary base having indicia thereon representative of a defined period of time; a first circular wheel concentrically positioned on the stationary base, the first circular wheel representative of a first medication being taken by a patient; and a pin coupling the substantially circular wheel to said stationary base to permit the wheel to rotate 360 degrees about said base. The method of tapering medication includes gradually increasing the time intervals that medication is administered to a post-operative patient.

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