Time filter

Source Type

News Article | November 17, 2016
Site: www.eurekalert.org

BOSTON - Boston Medical Center (BMC) has been awarded a three-year, $1.2 million grant from the Health Resources and Services Administration to expand access to high quality care for underserved populations of children and youth with epilepsy and related disorders. BMC's Comprehensive Epilepsy Center and Section of Pediatric Neurology will lead the 'Telehealth Epilepsy Care Collaborative,' a program that aims to reach a minimum of 1,000 children and youth up to age 24 with epilepsy through advanced telemedicine applications. "We will be working with and training physicians from six community health centers (CHCs) - a total of 13 clinical sites across the state - to better identify signs of seizures in infants, children and adolescents," said Laurie Douglass, director of pediatric epilepsy at BMC and principal investigator of the grant. "BMC specialists will also help lead the entire diagnosis process by providing multidisciplinary assessments, coordinated treatment planning, seizure action plans, and transition plans for children enrolled in the program." Children facing health disparities often have a high risk of unrecognized seizures and epilepsy. In a previously released ELGAN (The Extremely Low Gestational Age Newborn) study conducted by Dr. Douglass, a screening of 900 children at 10 years of age showed that a third had not been previously reported to have epilepsy. Nearly seventy-five percent of those with unrecognized epilepsy, or approximately 225 children, came from low-income and/or single parent families. "The need to travel to a metropolitan area for a diagnosis or specialty care, like that required by epilepsy, can place an inordinate burden on patients and families, especially patients with disabilities and those of limited means," said Douglass, who is also an assistant professor of pediatrics and neurology at Boston University School of Medicine. "It's integral that we diagnose epilepsy early in children, as it's often accompanied by developmental, cognitive and behavioral comorbidities that affect the developing brain and can result in life-long disability." By providing participating CHCs with a highly sensitive seizure screen platform to conduct initial screenings, developed in partnership with the technology company ACT.md, and by enhancing physicians' ability to better recognize signs of seizures, BMC will save parents a potentially long trip to a specialty clinic. If an initial screen shows signs of epilepsy, the CHC can refer patients to BMC specialists who will interview the family and conduct a second seizure screen via a HIPPA-compliant, secure web-based system. Patients with a positive second screen will be triaged for rapid evaluation and a comprehensive, multidisciplinary assessment at the Epilepsy Center within two weeks. For patients with negative screens, the epilepsy team and primary care provider will develop a triage plan to monitor, recommend additional diagnostic testing, and/or suggest an evaluation by a general child neurologist. BMC specialists will work with the patients' CHC and primary care teams to design, implement and monitor mhealth (mobile health) care and seizure action plans that will be accessible through an enhanced virtual medical home within ACT.md. Telemedicine encounters, also using the ACT.md platform, will be an essential part of follow up care, eliminating the need for patients and families to travel back to BMC for pediatric neurology and other specialty care. Videoconferencing check-ins will allow families to discuss topics like new medications, possible side-effects of medications, and new symptoms with BMC specialists, and it enables physicians to see and help more patients, improving patient access and experience. "Patients will leave BMC with an enhanced virtual medical home that can be shared with other family members, developmental or behavioral specialists, teachers, and during emergency room visits to better coordinate care," said Douglass. Studies have shown that comprehensive telemedicine care plans for adults can decrease hospitalizations and improve patient satisfaction, and it is a proven method for expanding access to care (especially in remote areas) and potentially reducing the cost of care. Another primary activity of the program is launching a 'Children and Youth with Epilepsy Quality Improvement Learning Collaborative' for physicians state-wide, which will meet monthly via web-based conferencing and be facilitated by BMC staff. Members of the learning collaborative will receive updates on best treatment practices for epilepsy, have access to a library of electronic learning materials, and participate in quality improvement efforts. They will also help develop a new transitional care framework for youth with epilepsy who are aging out of pediatric care. The grant H98MC30371-01-01 was awarded by the Health Resources & Services Administration.


News Article | November 17, 2016
Site: www.prweb.com

Mobile health technology leader, Irody, today announced the results of a study that showed electronic diaries or journal apps can be useful in clinical settings for enhanced patient and medication management. The study also highlights advantages of electronic tracking over traditional assessment methods of adherence. The study, “Medication adherence in women with epilepsy who are planning pregnancy,” which was published recently in the peer-reviewed journal, Epilepsia, was designed to evaluate the utility of electronic diary apps for tracking of medication adherence for women who have epilepsy and are trying to achieve pregnancy. This is important because in managing epilepsy it is important for the doctor to know how patients are actually using their medications. The controlled, multi-center observational study was conducted by New York University Langone Epilepsy Center, Mount Sinai School of Medicine, and Brigham and Women's Hospital, over the course of three-and-a-half years. “This strong collaboration of key stakeholders shows that there is significant potential for using digital technology for improving clinical efficiencies related to tracking patient compliance, and, as a result, for improving patient outcomes,” said Eyal Bartfeld, DMD, PhD, CEO of Irody and one of the authors of the study. “The results of this study illustrate how we can use technology to transform clinical care, the patient experience and — ultimately, patient outcomes — in the new value-based health care environment.” According to the article, participants in the study used the EpiDiary, an electronic diary mobile app, to record medication use, seizure activity, the use of other non-epileptic medications, menstrual cycles and sexual activity, as well as ongoing self-management and support activities. The study followed 86 women with epilepsy from their date of enrollment in the study until their date of delivery, or up to 12 months, if pregnancy was not achieved. “Monitoring of medication adherence presents a tremendous challenge to clinicians and to clinical researchers” said Jacqueline French MD, professor, New York University Comprehensive Epilepsy Center, and senior author on the study. “Poor adherence has been shown to negatively impact health care spending by resulting in more emergency room visits and hospitalizations, and may result in incomplete seizure control and increased risk of sudden death. Many times, patients do not report to their doctor about missed medication doses. This information could be used to discuss and improve compliance.” Highlights from the study include the following data points: The increased compliance seen by patients who used the electronic diary suggests that it may be useful to track medication adherence in future studies and in clinical settings. Study authors suggest that outcomes may be driven in part by the daily reminders and real-time feedback that is provided by the electronic diary, which facilitates compliance and long-term engagement. About Irody Based in Boston, Mass., Irody was founded by a group of scientists, technology leaders and entrepreneurs with expertise in computer vision and signal processing, medicine, epidemiology and medical informatics. The company’s proprietary pill recognition technology is the basis for solutions like mobile patient diaries such as EpiDiary. Irody’s cloud and mobile apps are currently in use in several clinical trials and by more than 30 academic institutions in the United States, Canada, Europe and Australia. Data from EpiDiary has been used for multiple peer-reviewed publications.


CHANDLER, Ariz., Feb. 15, 2017 (GLOBE NEWSWIRE) -- Insys Therapeutics, Inc. (NASDAQ:INSY) ("Insys" or "the Company") today announced that the Company is providing for the use of Cannabidiol Oral Solution at doses up to 40 mg/kg/day in compassionate use studies in subjects with refractory pediatric epilepsy following completion of 48 weeks of treatment in the ongoing long-term safety study.  The long-term safety study permitted subjects who had completed the initial safety and pharmacokinetic (PK) study to receive Cannabidiol Oral Solution at doses up to 40 mg/kg/day for up to 48 weeks.  In the initial safety and PK study, 61 subjects with refractory epilepsy, between the ages of one and 17 years, received total daily doses of 10 mg/kg, 20 mg/kg or 40 mg/kg.  In nine of the 61 subjects where Delta-9-THC was measured, no quantifiable plasma levels of Delta-9-THC were detected. Cannabidiol Oral Solution was generally well tolerated.  From the initial safety and PK study, 53 subjects continued into the long-term safety study, of which 15 subjects have completed 48 weeks of treatment with Cannabidiol Oral Solution across multiple investigative sites in the United States. “We are pleased that investigators have deemed it appropriate to continue patients on Cannabidiol Oral Solution beyond 48 weeks of treatment and we remain dedicated to making our product available to them,” said Dr. Santosh Vetticaden, Insys’ Interim CEO, and Chief Medical Officer. Cannabidiol Oral Solution for the compassionate use studies is being provided at no cost to patients or investigators. Currently, several investigators have received FDA approval for compassionate use and have patients currently enrolled in this program. “I am pleased that Insys is making Cannabidiol Oral Solution available on a compassionate use basis and I look forward to participating in this program,” stated Maria Roberta Cilio, MD, PhD at the University of California, San Francisco Pediatric Epilepsy Center and an investigator participating in the Company’s long-term safety study. Expanded access, also called “compassionate use,” provides a pathway for patients to gain access to investigational drugs (i.e., one that has not been approved by FDA). Insys Therapeutics is a specialty pharmaceutical company that develops and commercializes innovative drugs and novel drug delivery systems of therapeutic molecules that improve the quality of life of patients. Using proprietary sublingual spray technology and capabilities to develop pharmaceutical cannabinoids, Insys is developing a pipeline of products intending to address unmet medical needs and the clinical shortcomings of existing commercial products. Insys currently markets one product, SUBSYS® (fentanyl sublingual spray) but has received approval for the marketing of SYNDROS™ (dronabinol oral solution), a proprietary, orally administered liquid formulation of dronabinol that Insys believes has distinct advantages over the current formulation of dronabinol in soft gel capsule.  Insys is committed to developing medications for potentially treating addiction to opioids, opioid overdose, epilepsy, and other disease areas with high unmet need. SUBSYS® and SYNDROS™ are trademarks of Insys Development Company, Inc., a subsidiary of Insys Therapeutics, Inc.


News Article | December 27, 2016
Site: marketersmedia.com

Champions Professionals John Cook, Mark Calcavecchia, Lee Janzen, Jeff Sluman, Join Field of 48 Celebrities: Josh Donaldson, Roger Clemens, Jerry Rice and others at $1.25 Million Golf Tournament benefiting Florida Hospital for Children ORLANDO, FL / ACCESSWIRE / December 27, 2016 / Central Florida golf and sports fans can score a 33 percent discount for weekend-long and daily tickets to the Diamond Resorts Invitational benefiting Florida Hospital for Children by visiting Walgreens stores. Over 200 Walgreens stores are participating in the program, which offers the regularly-priced $60 three-day pass for just $40 and the daily pass at just $20, or $10 off. The newly-minted tournament is in its second year and is now part of the PGA TOUR Champions schedule as the first event of the new year, Jan. 13-15 at Tranquilo Golf Club at Four Seasons Resort Orlando at Walt Disney World Resort. Thirty PGA TOUR Champions players and 48 top-tier sports and entertainment celebrities will compete for $1.25 million in prize money. Further information is available at www.DiamondResortsInvitational.com, where full-price tickets are currently available. Early commitments from PGA TOUR Champions professionals include John Cook, Mark Calcavecchia, Lee Janzen, Scott Hoch and Jeff Sluman. Between them, the five Champions players represent 49 PGA TOUR and 23 PGA TOUR Champions victories, including four major championships and more than $123 million in career winnings. Ticket holders will be able to get up close and personal with sports and entertainment stars including Marcus Allen, Roger Clemens, Josh Donaldson, Colt Ford, Tom Glavine, Greg Maddux, Brian McCann, Kevin Millar, Mike Modano, Mark Mulder, Blair O'Neal, Jake Owen, Alfonso Ribeiro, Jeremy Roenick, Mark Rypien, Emmitt Smith, John Smoltz, Cole Swindell, Brian Urlacher, Justin Verlander, Larry the Cable Guy and defending champion Mardy Fish. Invited celebrities will include active Major League Baseball and NFL football players, as well as former NBA and NHL stars, plus musical artists, comedians and other entertainers. The entire field places an emphasis on notable golfers and celebrities appealing to fans and families both locally in Orlando and nationally via Golf Channel. "This event has become a community-wide partnership with Walgreens' participation plus the regional golf community, Tranquilo Golf Club and Disney, all in support of Florida Hospital For Children," said Michael Flaskey, executive vice president, chief sales and marketing officer, Diamond Resorts International®. "There is no other tournament like this in America with PGA TOUR winners of major titles competing alongside World Series and Super Bowl sports heroes." Competition will utilize a Modified Stableford scoring format which awards points as opposed to strokes - similar to the PGA TOUR's Barracuda Championship. The singular format allows for a distinct competition as all professionals and celebrities play their own ball and compete from the same tees for 54 holes. PGA TOUR Champions players will compete for $750,000 over the 54-hole tournament, while the celebrities will play for a $500,000 purse. Threesomes will include one Champions Tour professional and two celebrities. Though not part of the Charles Schwab Cup season-long competition, the Diamond Resorts Invitational is the final "Challenge Season" tournament before the Tour's Regular Season opening event the following week, January 16-22 at the Mitsubishi Electric Championship at Hualalai at Hualalai Golf Club in Ka'upulehu-Kona, Hawaii. This past January, the inaugural Diamond Resorts Invitational featured 69 celebrities in the field with former No. 1-ranked American tennis player Mardy Fish winning the event. Activities for the whole family took place throughout tournament week and the silent and live auctions raised $503,000 in charitable donations for Florida Hospital for Children. Florida Hospital for Children is one of the premier children's hospitals in the nation, setting standards for innovation, quality and comprehensive care. The child-centric healing environment designed to keep kids comfortable is complemented by a staff of world-class doctors, specialists, nurses and healthcare professionals utilizing advanced technologies, therapies and treatments. Florida Hospital for Children's team of over 135 highly skilled pediatric specialists delivers extraordinary care across more than 35 pediatric subspecialties, including a children's emergency department, the Level IV Comprehensive Pediatric Epilepsy Center, a world-renowned pediatric heart center and a Level III neonatal intensive care unit (NICU). Tournament week will begin Thursday, January 12 with the fourth-annual Brian Gay Pro-Am presented by Diamond Resorts International®. Gay, a four-time PGA TOUR winner and longtime Orlando resident, will serve as host of the 18-hole celebrity-amateur competition, which will feature foursomes comprised of three amateurs and one celebrity or PGA TOUR Champions player. An evening gala and headliner concert at Mystic Dunes Resort and Golf Club, a Diamond Resorts flagship resort in Orlando, will complement the day's events. The Champions Gala is a highlight of the event with its gourmet dinner and headliner concerts that have featured Huey Lewis and the News, Darius Rucker, Colt Ford and Jake Owen. The accompanying live and silent auctions have raised more than $1.7 million for Florida Hospital for Children the past three years. The tournament site, Tranquilo Golf Club at Four Seasons Orlando was designed by Tom Fazio and opened in 1992 as Osprey Ridge; Fazio enhanced the Orlando golf course for its October 2014 launch as Tranquilo Golf Club at Four Seasons Orlando. The course is a par 71 and plays to 6,901 yards. All three rounds will be televised live by the Golf Channel culminating with the final round on Sunday, Jan. 15. Diamond Resorts International®, owner and creator of the event, will also provide two complimentary 3-day grounds passes to the January 13-15 tournament for all military - active and retired as well as first responders: active and retired police, fire and emergency medical technician (EMT) personnel. This offer is only valid with online registration at www.diamondresortsinvitational.com.* All service men and women and first responders can enter the promo code "SALUTE2017" on the website to locate the designated registration page. The ticket voucher (printed out at home or reserved for pickup at the event) will need to be exchanged at the onsite will call/ticket station before entering the event. Participants must show photo ID and official military or first responder identification to receive their complimentary admission. For more information on the Diamond Resorts Invitational, please visit www.DiamondResortsInvitational.com. *Tickets will be available to the first 1,000 entrants. Diamond Resorts International, with its network of more than 370 vacation destinations located in 35 countries throughout the continental United States, Hawaii, Canada, Mexico, the Caribbean, South America, Central America, Europe, Asia, Australia and Africa, provides guests with choice and flexibility to let them create their dream vacation, whether traveling an hour away or around the world. Our relaxing vacations have the power to give guests an increased sense of happiness and satisfaction in their lives, while feeling healthier and more fulfilled in their relationships by enjoying memorable and meaningful experiences that let them "Stay Vacationed.™" Diamond Resorts International® manages vacation ownership resorts and sells vacation ownership points that provide members and owners with Vacations for Life® at over 370 managed and affiliated properties and cruise itineraries. Florida Hospital for Children is a seven-story, 201-bed state-of-the-art facility designed with the help of Walt Disney Imagineers, families and clinicians. Our team of over 135 highly skilled pediatric specialists delivers extraordinary care across more than 35 pediatric subspecialties, including a Children's Emergency Department, the Level IV Comprehensive Pediatric Epilepsy Center, a world-renowned Pediatric Heart Center and our Level III Neonatal Intensive Care Unit (NICU). With more than 23 pediatric specialty surgeons performing complex operations in a safe and child friendly environment, Florida Hospital for Children is a destination for health and healing. Learn more at www.FloridaHospitalforChildren.com. PGA TOUR Champions is a membership organization of golfers age 50 and older, with the most recognizable and accomplished players in the game - including 34 members of the World Golf Hall of Fame, which compete regularly in its events. PGA TOUR Champions is where Legends play, and is home to The Ultimate Clubhouse. Conceived in 1980 as the Senior PGA Tour, it started with just four events and purses totaling $475,000. The primary purpose of PGA TOUR Champions is to provide financial opportunities for its players, entertain and inspire its fans, deliver substantial value to its partners, create outlets for volunteers to give back, protect the integrity of the game and generate significant charitable and economic impact in communities in which it plays. In 2016, the newly-introduced Charles Schwab Cup Playoffs will identify and recognize the Tour's leading player via a season-long race for the Charles Schwab Cup. The Commissioner of the PGA TOUR is Tim Finchem. Greg McLaughlin is President of PGA TOUR Champions. The PGA TOUR's website is pgatour.com, the No. 1 site in golf, and the organization is headquartered in Ponte Vedra Beach, Fla. Follow PGA TOUR Champions at facebook.com/PGATOURChampions and on Twitter @ChampionsTour. Diamond Resorts - Vacations for Life - Stay Vacationed: http://www.diamondresortsnews.com Diamond Resorts (@diamondresorts) - Twitter: https://twitter.com/diamondresorts Diamond Resorts International - Facebook: https://www.facebook.com/DiamondResortsInternational/ Diamond Resorts International® Why Vacations for Life® - YouTube: https://www.youtube.com/watch?v=wuBW2aWUO5s Champions Professionals John Cook, Mark Calcavecchia, Lee Janzen, Jeff Sluman, Join Field of 48 Celebrities: Josh Donaldson, Roger Clemens, Jerry Rice and others at $1.25 Million Golf Tournament benefiting Florida Hospital for Children ORLANDO, FL / ACCESSWIRE / December 27, 2016 / Central Florida golf and sports fans can score a 33 percent discount for weekend-long and daily tickets to the Diamond Resorts Invitational benefiting Florida Hospital for Children by visiting Walgreens stores. Over 200 Walgreens stores are participating in the program, which offers the regularly-priced $60 three-day pass for just $40 and the daily pass at just $20, or $10 off. The newly-minted tournament is in its second year and is now part of the PGA TOUR Champions schedule as the first event of the new year, Jan. 13-15 at Tranquilo Golf Club at Four Seasons Resort Orlando at Walt Disney World Resort. Thirty PGA TOUR Champions players and 48 top-tier sports and entertainment celebrities will compete for $1.25 million in prize money. Further information is available at www.DiamondResortsInvitational.com, where full-price tickets are currently available. Early commitments from PGA TOUR Champions professionals include John Cook, Mark Calcavecchia, Lee Janzen, Scott Hoch and Jeff Sluman. Between them, the five Champions players represent 49 PGA TOUR and 23 PGA TOUR Champions victories, including four major championships and more than $123 million in career winnings. Ticket holders will be able to get up close and personal with sports and entertainment stars including Marcus Allen, Roger Clemens, Josh Donaldson, Colt Ford, Tom Glavine, Greg Maddux, Brian McCann, Kevin Millar, Mike Modano, Mark Mulder, Blair O'Neal, Jake Owen, Alfonso Ribeiro, Jeremy Roenick, Mark Rypien, Emmitt Smith, John Smoltz, Cole Swindell, Brian Urlacher, Justin Verlander, Larry the Cable Guy and defending champion Mardy Fish. Invited celebrities will include active Major League Baseball and NFL football players, as well as former NBA and NHL stars, plus musical artists, comedians and other entertainers. The entire field places an emphasis on notable golfers and celebrities appealing to fans and families both locally in Orlando and nationally via Golf Channel. "This event has become a community-wide partnership with Walgreens' participation plus the regional golf community, Tranquilo Golf Club and Disney, all in support of Florida Hospital For Children," said Michael Flaskey, executive vice president, chief sales and marketing officer, Diamond Resorts International®. "There is no other tournament like this in America with PGA TOUR winners of major titles competing alongside World Series and Super Bowl sports heroes." Competition will utilize a Modified Stableford scoring format which awards points as opposed to strokes - similar to the PGA TOUR's Barracuda Championship. The singular format allows for a distinct competition as all professionals and celebrities play their own ball and compete from the same tees for 54 holes. PGA TOUR Champions players will compete for $750,000 over the 54-hole tournament, while the celebrities will play for a $500,000 purse. Threesomes will include one Champions Tour professional and two celebrities. Though not part of the Charles Schwab Cup season-long competition, the Diamond Resorts Invitational is the final "Challenge Season" tournament before the Tour's Regular Season opening event the following week, January 16-22 at the Mitsubishi Electric Championship at Hualalai at Hualalai Golf Club in Ka'upulehu-Kona, Hawaii. This past January, the inaugural Diamond Resorts Invitational featured 69 celebrities in the field with former No. 1-ranked American tennis player Mardy Fish winning the event. Activities for the whole family took place throughout tournament week and the silent and live auctions raised $503,000 in charitable donations for Florida Hospital for Children. Florida Hospital for Children is one of the premier children's hospitals in the nation, setting standards for innovation, quality and comprehensive care. The child-centric healing environment designed to keep kids comfortable is complemented by a staff of world-class doctors, specialists, nurses and healthcare professionals utilizing advanced technologies, therapies and treatments. Florida Hospital for Children's team of over 135 highly skilled pediatric specialists delivers extraordinary care across more than 35 pediatric subspecialties, including a children's emergency department, the Level IV Comprehensive Pediatric Epilepsy Center, a world-renowned pediatric heart center and a Level III neonatal intensive care unit (NICU). Tournament week will begin Thursday, January 12 with the fourth-annual Brian Gay Pro-Am presented by Diamond Resorts International®. Gay, a four-time PGA TOUR winner and longtime Orlando resident, will serve as host of the 18-hole celebrity-amateur competition, which will feature foursomes comprised of three amateurs and one celebrity or PGA TOUR Champions player. An evening gala and headliner concert at Mystic Dunes Resort and Golf Club, a Diamond Resorts flagship resort in Orlando, will complement the day's events. The Champions Gala is a highlight of the event with its gourmet dinner and headliner concerts that have featured Huey Lewis and the News, Darius Rucker, Colt Ford and Jake Owen. The accompanying live and silent auctions have raised more than $1.7 million for Florida Hospital for Children the past three years. The tournament site, Tranquilo Golf Club at Four Seasons Orlando was designed by Tom Fazio and opened in 1992 as Osprey Ridge; Fazio enhanced the Orlando golf course for its October 2014 launch as Tranquilo Golf Club at Four Seasons Orlando. The course is a par 71 and plays to 6,901 yards. All three rounds will be televised live by the Golf Channel culminating with the final round on Sunday, Jan. 15. Diamond Resorts International®, owner and creator of the event, will also provide two complimentary 3-day grounds passes to the January 13-15 tournament for all military - active and retired as well as first responders: active and retired police, fire and emergency medical technician (EMT) personnel. This offer is only valid with online registration at www.diamondresortsinvitational.com.* All service men and women and first responders can enter the promo code "SALUTE2017" on the website to locate the designated registration page. The ticket voucher (printed out at home or reserved for pickup at the event) will need to be exchanged at the onsite will call/ticket station before entering the event. Participants must show photo ID and official military or first responder identification to receive their complimentary admission. For more information on the Diamond Resorts Invitational, please visit www.DiamondResortsInvitational.com. *Tickets will be available to the first 1,000 entrants. Diamond Resorts International, with its network of more than 370 vacation destinations located in 35 countries throughout the continental United States, Hawaii, Canada, Mexico, the Caribbean, South America, Central America, Europe, Asia, Australia and Africa, provides guests with choice and flexibility to let them create their dream vacation, whether traveling an hour away or around the world. Our relaxing vacations have the power to give guests an increased sense of happiness and satisfaction in their lives, while feeling healthier and more fulfilled in their relationships by enjoying memorable and meaningful experiences that let them "Stay Vacationed.™" Diamond Resorts International® manages vacation ownership resorts and sells vacation ownership points that provide members and owners with Vacations for Life® at over 370 managed and affiliated properties and cruise itineraries. Florida Hospital for Children is a seven-story, 201-bed state-of-the-art facility designed with the help of Walt Disney Imagineers, families and clinicians. Our team of over 135 highly skilled pediatric specialists delivers extraordinary care across more than 35 pediatric subspecialties, including a Children's Emergency Department, the Level IV Comprehensive Pediatric Epilepsy Center, a world-renowned Pediatric Heart Center and our Level III Neonatal Intensive Care Unit (NICU). With more than 23 pediatric specialty surgeons performing complex operations in a safe and child friendly environment, Florida Hospital for Children is a destination for health and healing. Learn more at www.FloridaHospitalforChildren.com. PGA TOUR Champions is a membership organization of golfers age 50 and older, with the most recognizable and accomplished players in the game - including 34 members of the World Golf Hall of Fame, which compete regularly in its events. PGA TOUR Champions is where Legends play, and is home to The Ultimate Clubhouse. Conceived in 1980 as the Senior PGA Tour, it started with just four events and purses totaling $475,000. The primary purpose of PGA TOUR Champions is to provide financial opportunities for its players, entertain and inspire its fans, deliver substantial value to its partners, create outlets for volunteers to give back, protect the integrity of the game and generate significant charitable and economic impact in communities in which it plays. In 2016, the newly-introduced Charles Schwab Cup Playoffs will identify and recognize the Tour's leading player via a season-long race for the Charles Schwab Cup. The Commissioner of the PGA TOUR is Tim Finchem. Greg McLaughlin is President of PGA TOUR Champions. The PGA TOUR's website is pgatour.com, the No. 1 site in golf, and the organization is headquartered in Ponte Vedra Beach, Fla. Follow PGA TOUR Champions at facebook.com/PGATOURChampions and on Twitter @ChampionsTour. Diamond Resorts - Vacations for Life - Stay Vacationed: http://www.diamondresortsnews.com Diamond Resorts (@diamondresorts) - Twitter: https://twitter.com/diamondresorts Diamond Resorts International - Facebook: https://www.facebook.com/DiamondResortsInternational/ Diamond Resorts International® Why Vacations for Life® - YouTube: https://www.youtube.com/watch?v=wuBW2aWUO5s


ORLANDO, FL / ACCESSWIRE / December 22, 2016 / Military and first responders will be presented with complimentary admission* to the Diamond Resorts Invitational benefiting Florida Hospital for Children, now a PGA TOUR Champions Challenge Season Event, and second annual golf tournament at Tranquilo Golf Club at Four Seasons Resort Orlando at Walt Disney World Resort, FL, January 13-15, 2017. Diamond Resorts International®, owner and creator of the event, will provide two complimentary 3-day grounds passes to the January 10-15 tournament for all active and retired military. The same offer is extended to active and retired police, fire and emergency medical technician (EMT) personnel. This offer is only valid with online registration at DiamondResortsInvitational.com. All service men and women and first responders can enter the promo code "SALUTE2017" on the website to locate the designated registration page. The ticket voucher (printed out at home or reserved for pickup at the event) will need to be exchanged at the onsite will call/ticket station before entering the event. Participants must show photo ID and official military or first responder identification to receive their complimentary admission. The tournament will feature up to 30 PGA TOUR Champions players and up to 50 top-tier sports and entertainment celebrities in two distinct competitions, utilizing a Modified Stableford scoring format which awards points as opposed to strokes – similar to the PGA TOUR's Barracuda Championship. The Diamond Resorts Invitational is a competition for celebrity golfers in a professional tournament format over three days and 54 holes. Celebrity commitments thus far for the 2017 event include Marcus Allen, Roger Clemens, Josh Donaldson, Colt Ford, Tom Glavine, Greg Maddux, Brian McCann, Kevin Millar, Mark Mulder, Blair O'Neal, Jake Owen, Alfonso Ribeiro, Jeremy Roenick, Mark Rypien, John Smoltz, Brian Urlacher, Justin Verlander, Larry the Cable Guy and defending champion Mardy Fish. Retired United States Army Corporal Chad Pfeifer, an Iraqi War Veteran and amputee whose golf-centered rehabilitation has turned him into a top-tier tournament player, will join the field of 48 sports and entertainment celebrities. While serving in Iraq in 2007, Pfeifer's life changed when a bomb exploded under the patrol vehicle he was driving and he lost his left leg above the knee. A three-time winner of the George W. Bush Presidential Center's Warrior Open and the 2011 National Amputee Tournament champion, the 34-year-old Pfeifer is a Diamond Resorts International® Ambassador and continues to follow his dream, currently working as a PGA Club Professional in Texas. PGA TOUR Champions players will compete for $750,000 over the 54-hole tournament, while the celebrities will play for a $500,000 purse. Threesomes will include one Champions Tour professional and two celebrities. Tournament week will begin Thursday, January 12 with the fourth-annual Brian Gay Pro-Am presented by Diamond Resorts International®. Gay, a four-time PGA TOUR winner and longtime Orlando resident, will serve as host of the 18-hole celebrity-amateur competition, which will feature foursomes comprised of three amateurs and one celebrity or PGA TOUR Champions player. An evening gala and headliner concert at Mystic Dunes Resort and Golf Club, a Diamond Resorts flagship resort in Orlando, will complement the day's events. The Champions Gala is a highlight of the event with its gourmet dinner and headliner concerts that have featured Huey Lewis and the News, Darius Rucker, Colt Ford and Jake Owen. The accompanying live and silent auctions have raised more than $1.7 million for Florida Hospital for Children the past three years. The tournament site, Tranquilo Golf Club at Four Seasons Orlando is unique to Central Florida for its varying elevation, abundant wildlife and protected wetlands. Originally built in 1992 and designed by Tom Fazio as Osprey Ridge, Fazio enhanced the Orlando golf course for its October 2014 launch as Tranquilo Golf Club at Four Seasons Resort Orlando. The course is a par 71 and plays to 6,901 yards. All three rounds will be televised live by the Golf Channel culminating with the final round on Sunday, Jan. 15. The Diamond Resorts Invitational is also conducting a Golf Sweepstakes awarding a winner a five day/four night vacation for four to Orlando including accommodations at Mystic Dunes Resort & Golf Club and the opportunity to play with PGA Champions Pro, John Cook. To enter visit DiamondResorts.com/golf-sweepstakes. For more information about the tournament, visit DiamondResortsInvitational.com *Tickets will be available to the first 1,000 entrants. Diamond Resorts International, with its network of more than 370 vacation destinations located in 35 countries throughout the continental United States, Hawaii, Canada, Mexico, the Caribbean, South America, Central America, Europe, Asia, Australia and Africa, provides guests with choice and flexibility to let them create their dream vacation, whether traveling an hour away or around the world. Our relaxing vacations have the power to give guests an increased sense of happiness and satisfaction in their lives, while feeling healthier and more fulfilled in their relationships by enjoying memorable and meaningful experiences that let them "Stay Vacationed.™" Diamond Resorts International® manages vacation ownership resorts and sells vacation ownership points that provide members and owners with Vacations for Life® at over 370 managed and affiliated properties and cruise itineraries. Florida Hospital for Children is a seven-story, 201-bed state-of-the-art facility designed with the help of Walt Disney Imagineers, families and clinicians. Our team of over 135 highly skilled pediatric specialists delivers extraordinary care across more than 35 pediatric subspecialties, including a Children's Emergency Department, the Level IV Comprehensive Pediatric Epilepsy Center, a world-renowned Pediatric Heart Center and our Level III Neonatal Intensive Care Unit (NICU). With more than 23 pediatric specialty surgeons performing complex operations in a safe and child friendly environment, Florida Hospital for Children is a destination for health and healing. Learn more at www.FloridaHospitalforChildren.com. PGA TOUR Champions is a membership organization of golfers age 50 and older, with the most recognizable and accomplished players in the game - including 34 members of the World Golf Hall of Fame, which compete regularly in its events. PGA TOUR Champions is where Legends play, and is home to The Ultimate Clubhouse. Conceived in 1980 as the Senior PGA Tour, it started with just four events and purses totaling $475,000. The primary purpose of PGA TOUR Champions is to provide financial opportunities for its players, entertain and inspire its fans, deliver substantial value to its partners, create outlets for volunteers to give back, protect the integrity of the game and generate significant charitable and economic impact in communities in which it plays. In 2016, the newly-introduced Charles Schwab Cup Playoffs will identify and recognize the Tour's leading player via a season-long race for the Charles Schwab Cup. The Commissioner of the PGA TOUR is Tim Finchem. Greg McLaughlin is President of PGA TOUR Champions. The PGA TOUR's website is pgatour.com, the No. 1 site in golf, and the organization is headquartered in Ponte Vedra Beach, Fla. Follow PGA TOUR Champions at facebook.com/PGATOURChampions and on Twitter @ChampionsTour. ORLANDO, FL / ACCESSWIRE / December 22, 2016 / Military and first responders will be presented with complimentary admission* to the Diamond Resorts Invitational benefiting Florida Hospital for Children, now a PGA TOUR Champions Challenge Season Event, and second annual golf tournament at Tranquilo Golf Club at Four Seasons Resort Orlando at Walt Disney World Resort, FL, January 13-15, 2017. Diamond Resorts International®, owner and creator of the event, will provide two complimentary 3-day grounds passes to the January 10-15 tournament for all active and retired military. The same offer is extended to active and retired police, fire and emergency medical technician (EMT) personnel. This offer is only valid with online registration at DiamondResortsInvitational.com. All service men and women and first responders can enter the promo code "SALUTE2017" on the website to locate the designated registration page. The ticket voucher (printed out at home or reserved for pickup at the event) will need to be exchanged at the onsite will call/ticket station before entering the event. Participants must show photo ID and official military or first responder identification to receive their complimentary admission. The tournament will feature up to 30 PGA TOUR Champions players and up to 50 top-tier sports and entertainment celebrities in two distinct competitions, utilizing a Modified Stableford scoring format which awards points as opposed to strokes – similar to the PGA TOUR's Barracuda Championship. The Diamond Resorts Invitational is a competition for celebrity golfers in a professional tournament format over three days and 54 holes. Celebrity commitments thus far for the 2017 event include Marcus Allen, Roger Clemens, Josh Donaldson, Colt Ford, Tom Glavine, Greg Maddux, Brian McCann, Kevin Millar, Mark Mulder, Blair O'Neal, Jake Owen, Alfonso Ribeiro, Jeremy Roenick, Mark Rypien, John Smoltz, Brian Urlacher, Justin Verlander, Larry the Cable Guy and defending champion Mardy Fish. Retired United States Army Corporal Chad Pfeifer, an Iraqi War Veteran and amputee whose golf-centered rehabilitation has turned him into a top-tier tournament player, will join the field of 48 sports and entertainment celebrities. While serving in Iraq in 2007, Pfeifer's life changed when a bomb exploded under the patrol vehicle he was driving and he lost his left leg above the knee. A three-time winner of the George W. Bush Presidential Center's Warrior Open and the 2011 National Amputee Tournament champion, the 34-year-old Pfeifer is a Diamond Resorts International® Ambassador and continues to follow his dream, currently working as a PGA Club Professional in Texas. PGA TOUR Champions players will compete for $750,000 over the 54-hole tournament, while the celebrities will play for a $500,000 purse. Threesomes will include one Champions Tour professional and two celebrities. Tournament week will begin Thursday, January 12 with the fourth-annual Brian Gay Pro-Am presented by Diamond Resorts International®. Gay, a four-time PGA TOUR winner and longtime Orlando resident, will serve as host of the 18-hole celebrity-amateur competition, which will feature foursomes comprised of three amateurs and one celebrity or PGA TOUR Champions player. An evening gala and headliner concert at Mystic Dunes Resort and Golf Club, a Diamond Resorts flagship resort in Orlando, will complement the day's events. The Champions Gala is a highlight of the event with its gourmet dinner and headliner concerts that have featured Huey Lewis and the News, Darius Rucker, Colt Ford and Jake Owen. The accompanying live and silent auctions have raised more than $1.7 million for Florida Hospital for Children the past three years. The tournament site, Tranquilo Golf Club at Four Seasons Orlando is unique to Central Florida for its varying elevation, abundant wildlife and protected wetlands. Originally built in 1992 and designed by Tom Fazio as Osprey Ridge, Fazio enhanced the Orlando golf course for its October 2014 launch as Tranquilo Golf Club at Four Seasons Resort Orlando. The course is a par 71 and plays to 6,901 yards. All three rounds will be televised live by the Golf Channel culminating with the final round on Sunday, Jan. 15. The Diamond Resorts Invitational is also conducting a Golf Sweepstakes awarding a winner a five day/four night vacation for four to Orlando including accommodations at Mystic Dunes Resort & Golf Club and the opportunity to play with PGA Champions Pro, John Cook. To enter visit DiamondResorts.com/golf-sweepstakes. For more information about the tournament, visit DiamondResortsInvitational.com *Tickets will be available to the first 1,000 entrants. Diamond Resorts International, with its network of more than 370 vacation destinations located in 35 countries throughout the continental United States, Hawaii, Canada, Mexico, the Caribbean, South America, Central America, Europe, Asia, Australia and Africa, provides guests with choice and flexibility to let them create their dream vacation, whether traveling an hour away or around the world. Our relaxing vacations have the power to give guests an increased sense of happiness and satisfaction in their lives, while feeling healthier and more fulfilled in their relationships by enjoying memorable and meaningful experiences that let them "Stay Vacationed.™" Diamond Resorts International® manages vacation ownership resorts and sells vacation ownership points that provide members and owners with Vacations for Life® at over 370 managed and affiliated properties and cruise itineraries. Florida Hospital for Children is a seven-story, 201-bed state-of-the-art facility designed with the help of Walt Disney Imagineers, families and clinicians. Our team of over 135 highly skilled pediatric specialists delivers extraordinary care across more than 35 pediatric subspecialties, including a Children's Emergency Department, the Level IV Comprehensive Pediatric Epilepsy Center, a world-renowned Pediatric Heart Center and our Level III Neonatal Intensive Care Unit (NICU). With more than 23 pediatric specialty surgeons performing complex operations in a safe and child friendly environment, Florida Hospital for Children is a destination for health and healing. Learn more at www.FloridaHospitalforChildren.com. PGA TOUR Champions is a membership organization of golfers age 50 and older, with the most recognizable and accomplished players in the game - including 34 members of the World Golf Hall of Fame, which compete regularly in its events. PGA TOUR Champions is where Legends play, and is home to The Ultimate Clubhouse. Conceived in 1980 as the Senior PGA Tour, it started with just four events and purses totaling $475,000. The primary purpose of PGA TOUR Champions is to provide financial opportunities for its players, entertain and inspire its fans, deliver substantial value to its partners, create outlets for volunteers to give back, protect the integrity of the game and generate significant charitable and economic impact in communities in which it plays. In 2016, the newly-introduced Charles Schwab Cup Playoffs will identify and recognize the Tour's leading player via a season-long race for the Charles Schwab Cup. The Commissioner of the PGA TOUR is Tim Finchem. Greg McLaughlin is President of PGA TOUR Champions. The PGA TOUR's website is pgatour.com, the No. 1 site in golf, and the organization is headquartered in Ponte Vedra Beach, Fla. Follow PGA TOUR Champions at facebook.com/PGATOURChampions and on Twitter @ChampionsTour.


News Article | November 9, 2016
Site: www.sciencedaily.com

By the time epilepsy patient Erika Fleck came to Loyola Medicine for a second opinion, she was having three or four seizures a week and hadn't been able to drive her two young children for five years. "It was no way to live," she said. Loyola epileptologist Jorge Asconapé, MD, recommended surgery to remove scar tissue in her brain that was triggering the seizures. Neurosurgeon Douglas Anderson, MD, performed the surgery, called an amygdalohippocampectomy. Ms. Fleck hasn't had a single seizure in the more than three years since her surgery. "I've got my life back," she said. "I left my seizures at Loyola." Surgery can be an option for a minority of patients who do not respond to medications or other treatments and have epileptic scar tissue that can be removed safely. In 60 to 70 percent of surgery patients, seizures are completely eliminated, and the success rate likely will improve as imaging and surgical techniques improve, Dr. Anderson said. Traditionally, patients would have to try several medications with poor results for years or decades before being considered for surgery, according to the Epilepsy Foundation. "More recently, surgery is being considered sooner," the foundation said. "Studies have shown that the earlier surgery is performed, the better the outcome." (Ms. Fleck is a service coordinator for the Epilepsy Foundation North/Central Illinois Iowa and Nebraska.) Dr. Asconapé said Ms. Fleck was a perfect candidate for surgery because the scar tissue causing her seizures was located in an area of the brain that could be removed without damaging critical structures. Ms. Fleck experienced complex partial seizures, characterized by a deep stare, unresponsiveness and loss of control for a minute or two. An MRI found the cause: A small area of scar tissue in a structure of the brain called the hippocampus. The subtle lesion had been overlooked at another center. Epilepsy surgery takes about three hours, and patients typically are in the hospital for two or three days. Like all surgery, epilepsy surgery entails risks, including infection, hemorrhage, injury to other parts of the brain and slight personality changes. But such complications are rare, and they pose less risk to patients than the risk of being injured during seizures, Dr. Asconapé said. Loyola has been designated a Level Four Epilepsy Center by the National Association of Epilepsy Centers. Level Four is the highest level of specialized epilepsy care available. Level Four centers have the professional expertise and facilities to provide the highest level of medical and surgical evaluation and treatment for patients with complex epilepsy. Loyola's comprehensive, multidisciplinary Epilepsy Center offers a comprehensive multidisciplinary approach to epilepsy and seizure disorders for adults and children as young as two years old. Pediatric and adult epileptologist consultation and state-of-the-art neuroimaging and electrodiagnostic technology are used to identify and assess complex seizure disorders by short- and long-term monitoring.


ORLANDO, FL / ACCESSWIRE / December 22, 2016 / Military and first responders will be presented with complimentary admission* to the Diamond Resorts Invitational benefiting Florida Hospital for Children, now a PGA TOUR Champions Challenge Season Event, and second annual golf tournament at Tranquilo Golf Club at Four Seasons Resort Orlando at Walt Disney World Resort, FL, January 13-15, 2017. Diamond Resorts International®, owner and creator of the event, will provide two complimentary 3-day grounds passes to the January 10-15 tournament for all active and retired military. The same offer is extended to active and retired police, fire and emergency medical technician (EMT) personnel. This offer is only valid with online registration at DiamondResortsInvitational.com. All service men and women and first responders can enter the promo code "SALUTE2017" on the website to locate the designated registration page. The ticket voucher (printed out at home or reserved for pickup at the event) will need to be exchanged at the onsite will call/ticket station before entering the event. Participants must show photo ID and official military or first responder identification to receive their complimentary admission. The tournament will feature up to 30 PGA TOUR Champions players and up to 50 top-tier sports and entertainment celebrities in two distinct competitions, utilizing a Modified Stableford scoring format which awards points as opposed to strokes – similar to the PGA TOUR's Barracuda Championship. The Diamond Resorts Invitational is a competition for celebrity golfers in a professional tournament format over three days and 54 holes. Celebrity commitments thus far for the 2017 event include Marcus Allen, Roger Clemens, Josh Donaldson, Colt Ford, Tom Glavine, Greg Maddux, Brian McCann, Kevin Millar, Mark Mulder, Blair O'Neal, Jake Owen, Alfonso Ribeiro, Jeremy Roenick, Mark Rypien, John Smoltz, Brian Urlacher, Justin Verlander, Larry the Cable Guy and defending champion Mardy Fish. Retired United States Army Corporal Chad Pfeifer, an Iraqi War Veteran and amputee whose golf-centered rehabilitation has turned him into a top-tier tournament player, will join the field of 48 sports and entertainment celebrities. While serving in Iraq in 2007, Pfeifer's life changed when a bomb exploded under the patrol vehicle he was driving and he lost his left leg above the knee. A three-time winner of the George W. Bush Presidential Center's Warrior Open and the 2011 National Amputee Tournament champion, the 34-year-old Pfeifer is a Diamond Resorts International® Ambassador and continues to follow his dream, currently working as a PGA Club Professional in Texas. PGA TOUR Champions players will compete for $750,000 over the 54-hole tournament, while the celebrities will play for a $500,000 purse. Threesomes will include one Champions Tour professional and two celebrities. Tournament week will begin Thursday, January 12 with the fourth-annual Brian Gay Pro-Am presented by Diamond Resorts International®. Gay, a four-time PGA TOUR winner and longtime Orlando resident, will serve as host of the 18-hole celebrity-amateur competition, which will feature foursomes comprised of three amateurs and one celebrity or PGA TOUR Champions player. An evening gala and headliner concert at Mystic Dunes Resort and Golf Club, a Diamond Resorts flagship resort in Orlando, will complement the day's events. The Champions Gala is a highlight of the event with its gourmet dinner and headliner concerts that have featured Huey Lewis and the News, Darius Rucker, Colt Ford and Jake Owen. The accompanying live and silent auctions have raised more than $1.7 million for Florida Hospital for Children the past three years. The tournament site, Tranquilo Golf Club at Four Seasons Orlando is unique to Central Florida for its varying elevation, abundant wildlife and protected wetlands. Originally built in 1992 and designed by Tom Fazio as Osprey Ridge, Fazio enhanced the Orlando golf course for its October 2014 launch as Tranquilo Golf Club at Four Seasons Resort Orlando. The course is a par 71 and plays to 6,901 yards. All three rounds will be televised live by the Golf Channel culminating with the final round on Sunday, Jan. 15. The Diamond Resorts Invitational is also conducting a Golf Sweepstakes awarding a winner a five day/four night vacation for four to Orlando including accommodations at Mystic Dunes Resort & Golf Club and the opportunity to play with PGA Champions Pro, John Cook. To enter visit DiamondResorts.com/golf-sweepstakes. For more information about the tournament, visit DiamondResortsInvitational.com *Tickets will be available to the first 1,000 entrants. Diamond Resorts International, with its network of more than 370 vacation destinations located in 35 countries throughout the continental United States, Hawaii, Canada, Mexico, the Caribbean, South America, Central America, Europe, Asia, Australia and Africa, provides guests with choice and flexibility to let them create their dream vacation, whether traveling an hour away or around the world. Our relaxing vacations have the power to give guests an increased sense of happiness and satisfaction in their lives, while feeling healthier and more fulfilled in their relationships by enjoying memorable and meaningful experiences that let them "Stay Vacationed.™" Diamond Resorts International® manages vacation ownership resorts and sells vacation ownership points that provide members and owners with Vacations for Life® at over 370 managed and affiliated properties and cruise itineraries. Florida Hospital for Children is a seven-story, 201-bed state-of-the-art facility designed with the help of Walt Disney Imagineers, families and clinicians. Our team of over 135 highly skilled pediatric specialists delivers extraordinary care across more than 35 pediatric subspecialties, including a Children's Emergency Department, the Level IV Comprehensive Pediatric Epilepsy Center, a world-renowned Pediatric Heart Center and our Level III Neonatal Intensive Care Unit (NICU). With more than 23 pediatric specialty surgeons performing complex operations in a safe and child friendly environment, Florida Hospital for Children is a destination for health and healing. Learn more at www.FloridaHospitalforChildren.com. PGA TOUR Champions is a membership organization of golfers age 50 and older, with the most recognizable and accomplished players in the game - including 34 members of the World Golf Hall of Fame, which compete regularly in its events. PGA TOUR Champions is where Legends play, and is home to The Ultimate Clubhouse. Conceived in 1980 as the Senior PGA Tour, it started with just four events and purses totaling $475,000. The primary purpose of PGA TOUR Champions is to provide financial opportunities for its players, entertain and inspire its fans, deliver substantial value to its partners, create outlets for volunteers to give back, protect the integrity of the game and generate significant charitable and economic impact in communities in which it plays. In 2016, the newly-introduced Charles Schwab Cup Playoffs will identify and recognize the Tour's leading player via a season-long race for the Charles Schwab Cup. The Commissioner of the PGA TOUR is Tim Finchem. Greg McLaughlin is President of PGA TOUR Champions. The PGA TOUR's website is pgatour.com, the No. 1 site in golf, and the organization is headquartered in Ponte Vedra Beach, Fla. Follow PGA TOUR Champions at facebook.com/PGATOURChampions and on Twitter @ChampionsTour.


News Article | January 8, 2016
Site: www.biosciencetechnology.com

A new open label study from University of California, San Francisco shows promise for purified cannabinoid as treatment for children and young adults with treatment-resistant epilepsy. The multi-site study, led by researchers at UCSF Benioff Children’s Hospital in San Francisco, administered the drug Epidiolex to 162 children and young adults between the ages of one and 30, at 11 different epilepsy centers in the U.S., for 12 weeks.   The drug comes in a liquid form and does not contain any tetrahydrocannabinol (THC), which is the psychotropic part in cannabis. According to the study, published Dec. 23 in The Lancet Neurology, over the 12-week trial, participants showed a median reduction in monthly motor seizures of 36.5 percent.  The median monthly frequency of motor seizures fell from 30 per month to 15.8. Participants had severely treatment-resistant epilepsies, including Dravet syndrome that did respond to many or all antiepileptic treatments. “This trial is pioneering a new treatment for children with the most severe epilepsies, for whom nothing else works,” Maria Roberta Cilio, M.D., Ph.D., senior author and director of research at the UCSF Pediatric Epilepsy Center said in a prepared statement. “This is just the first step.  This open label study found that CBD both reduces the frequency of seizures and has an adequate safety profile in children and young adults. Randomized controlled trials are the next step to characterize the true efficacy and safety profile of this promising compound.” An open label study means both the physicians and participants were aware that they were receiving and administering the drug and at what doses. The Food and Drug Administration (FDA) recently completed a double-blind randomized controlled Phase 3 trial of Epidiolex, and the analysis is expected to be done in February of 2016


News Article | March 1, 2017
Site: www.businesswire.com

ORLANDO, Fla.--(BUSINESS WIRE)--As a result of funds raised at the recent Diamond Resorts Invitational, Diamond Resorts International® presented a check for $570,000 to Florida Hospital for Children. The proceeds were raised during the annual event’s silent and live auctions at Mystic Dunes Resort & Golf Club in Celebration, Florida, from January 12-15, 2017. The tournament-related events have now raised more than $2.3 million for Florida Hospital for Children over the past four years. Florida Hospital for Children is one of the premier children’s hospitals in the nation, setting standards for innovation, quality and comprehensive care. The child-centric healing environment designed to keep kids comfortable is complemented by a staff of world-class doctors, specialists, nurses and healthcare professionals utilizing advanced technologies, therapies and treatments. Florida Hospital for Children’s team of over 135 highly skilled pediatric specialists delivers extraordinary care across more than 35 pediatric subspecialties, including a children's emergency department; the Level IV Comprehensive Pediatric Epilepsy Center; a world-renowned pediatric heart center; a Level III neonatal intensive care unit (NICU); and the Children’s Center for Cancer and Blood Disorders, Central Florida’s first and only pediatric bone marrow transplant program affiliated with Duke Health. Florida Hospital for Children’s flagship facility is a seven-story, 201-bed state-of-the-art hospital designed with the help of Walt Disney Imagineers, families and clinicians. (www.floridahospitalforchildren.com) “Year after year, Diamond Resorts International® exceeds our expectations and continues to provide tremendous support through proceeds raised at their live and silent auctions at the Diamond Resorts Invitational,” said Marla Silliman, Senior Executive Officer, Florida Hospital for Children. “We are honored to accept this generous donation as it will further our commitment to saving children’s lives and improving their health.” The Diamond Resorts Invitational™ was nationally televised on Golf Channel from Friday, January 13 through Sunday, January 15, and featured a groundbreaking format with 27 PGA TOUR Champions, four LPGA stars, and 48 sports and entertainment celebrities. The historic event marked the first time multiple LPGA players have competed individually against the PGA TOUR Champions in a PGA TOUR-sanctioned event. The Diamond Resorts Invitational was a week-long, full-scale, multidimensional vacation experience consisting of activities for all ages, family-friendly excursions, dinner parties and headline concerts featuring performances by Jana Kramer, Colt Ford, Jake Owen and Diamond Resorts’ newest celebrity ambassador, Cole Swindell. “The Diamond Resorts Invitational is a unique platform that allows us to leverage our ability to deliver hospitality on a large scale, while also giving back to our local community,” said Michael Flaskey, Chief Operating Officer, Diamond Resorts International®. “We have seen all the ways that our donations have made a significant impact on the lives of the children and families at Florida Hospital for Children over the years, and we are grateful for the opportunity to be a contributor to the hospital’s vital lifesaving mission.” Diamond Resorts International®, with its network of more than 370 vacation destinations located in 35 countries throughout the continental United States, Hawaii, Canada, Mexico, the Caribbean, South America, Central America, Europe, Asia, Australasia and Africa, provides guests with choice and flexibility to let them create their dream vacation, whether they are traveling an hour away or around the world. Our relaxing vacations have the power to give guests an increased sense of happiness and satisfaction in their lives, while feeling healthier and more fulfilled in their relationships, by enjoying memorable and meaningful experiences that let them Stay Vacationed.™ Diamond Resorts International® manages vacation ownership resorts and sells vacation ownership points that provide members and owners with Vacations for Life® at over 370 managed and affiliated properties and cruise itineraries.


Trimble M.,Institute of Neurology | Kanner A.,Rush University Medical Center | Schmitz B.,Epilepsy Center
Epilepsy and Behavior | Year: 2010

Postictal psychoses represent a considerable clinical challenge and are often unrecognized. In this review, the clinical features of the syndromes and the underlying biological foundations, as revealed through EEG and imaging studies, are discussed. It is concluded that although the syndrome can be well recognized, it is not acknowledged in standard diagnostic manuals, hence the relative neglect in the epilepsy literature. © 2010.

Loading Epilepsy Center collaborators
Loading Epilepsy Center collaborators