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Arthurs O.J.,Great Ormond Street Hospital for Children NHS Foundation Trust | Arthurs O.J.,University College London | van Rijn R.R.,Emma childrens hospital Academic Medical Center Amsterdam | Whitby E.H.,University of Sheffield | And 6 more authors.
Pediatric Radiology

A new task force on postmortem imaging was established at the annual meeting of the European Society of Paediatric Radiology (ESPR) in Graz, Austria, in 2015. The postmortem task force is separate from the child abuse task force as it covers all aspects of fetal, neonatal and non-forensic postmortem imaging. The main focus of the task force is the guidance and standardization of non-radiographic postmortem imaging, particularly postmortem CT and postmortem MRI. This manuscript outlines the starting point of the task force, with a mission statement, outline of current experience, and short- and long-term goals. © 2016, Springer-Verlag Berlin Heidelberg. Source

Sieswerda-Hoogendoorn T.,Netherlands Forensic Institute | Sieswerda-Hoogendoorn T.,Emma childrens hospital Academic Medical Center Amsterdam | Boos S.,Baystate Childrens Hospital | Bilo R.A.C.,Netherlands Forensic Institute | And 2 more authors.
European Journal of Pediatrics

Abusive head trauma (AHT) is a relatively common cause of neurotrauma in young children. Radiology plays an important role in establishing a diagnosis and assessing a prognosis. Computed tomography (CT), followed by magnetic resonance imaging (MRI) including diffusion-weighted imaging (DWI), is the best tool for neuroimaging. There is no evidence-based approach for the follow-up of AHT; both repeat CT and MRI are currently used but literature is not conclusive. A full skeletal survey according to international guidelines should always be performed to obtain information on possible underlying bone diseases or injuries suspicious for child abuse. Cranial ultrasonography is not indicated as a diagnostic modality for the evaluation of AHT. If there is a suspicion of AHT, this should be communicated with the clinicians immediately in order to arrange protective measures as long as AHT is part of the differential diagnosis. Conclusion: The final diagnosis of AHT can never be based on radiological findings only; this should always be made in a multidisciplinary team assessment where all clinical and psychosocial information is combined and judged by a group of experts in the field. © Springer-Verlag 2011. Source

Hatzmann J.,Emma childrens hospital Academic Medical Center Amsterdam | Heymans H.,Emma childrens hospital Academic Medical Center Amsterdam | Maurice-Stam H.,Emma childrens hospital Academic Medical Center Amsterdam | Grootenhuis M.,Emma childrens hospital Academic Medical Center Amsterdam
Journal of Child Health Care

Chronically ill children require several hours of additional care per day compared to healthy children. As parents provide most of this care, they have to incorporate it into their daily schedule, which implies a reduction in time for other activities. The study aimed to assess the effect of having a chronically ill child on parental employment and parental leisure activity time, and to explore the role of demographic, social, and disease-related variables in relation to employment and leisure activities. Outcomes of 576 parents of chronically ill children and 441 parents of healthy school children were analyzed with multivariate regression. Having a chronically ill child was negatively related with family employment, maternal labor force participation, and leisure activity time. Use of child care was positively related to family and maternal employment of the total group of parents. Within parents of chronically ill children, most important finding was the negative relation of dependency of the child on daily care and low parental educational level with family and maternal employment. In conclusion, parents of chronically ill children, mothers in particular, are disadvantaged in society probably due to the challenge of combining child care with work and leisure time. © The Author(s) 2013. Source

Scholten L.,Emma childrens hospital Academic Medical Center Amsterdam | Willemen A.M.,VU University Amsterdam | Grootenhuis M.A.,Emma childrens hospital Academic Medical Center Amsterdam | Maurice-Stam H.,Emma childrens hospital Academic Medical Center Amsterdam | And 3 more authors.
BMC Pediatrics

Background: Coping with a chronic illness (CI) challenges children's psychosocial functioning and wellbeing. Cognitive-behavioral intervention programs that focus on teaching the active use of coping strategies may prevent children with CI from developing psychosocial problems. Involvement of parents in the intervention program may enhance the use of learned coping strategies in daily life, especially on the long-term. The primary aim of the present study is to examine the effectiveness of a cognitive behavioral based group intervention (called 'Op Koers') 1 for children with CI and of a parallel intervention for their parents. A secondary objective is to investigate why and for whom this intervention works, in order to understand the underlying mechanisms of the intervention effect.Methods/design: This study is a multicentre randomized controlled trial. Participants are children (8 to 18 years of age) with a chronic illness, and their parents, recruited from seven participating hospitals in the Netherlands. Participants are randomly allocated to two intervention groups (the child intervention group and the child intervention combined with a parent program) and a wait-list control group. Primary outcomes are child psychosocial functioning, wellbeing and child disease related coping skills. Secondary outcomes are child quality of life, child general coping skills, child self-perception, parental stress, quality of parent-child interaction, and parental perceived vulnerability. Outcomes are evaluated at baseline, after 6 weeks of treatment, and at a 6 and 12-month follow-up period. The analyses will be performed on the basis of an intention-to-treat population.Discussion: This study evaluates the effectiveness of a group intervention improving psychosocial functioning in children with CI and their parents. If proven effective, the intervention will be implemented in clinical practice. Strengths and limitations of the study design are discussed.Trial registration: Current Controlled Trials ISRCTN60919570. © 2011 Scholten et al; licensee BioMed Central Ltd. Source

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